This manual was designed primarily for use by people with disabilities. The hope is that it is also useful for families, as well as service coordinators and providers who directly assist families and individuals with disabilities. The focus of this manual is to provide easy-to-read information about available resources, and to provide immediate…

This manual was designed primarily for use by people with disabilities. The hope is that it is also useful for families, as well as service coordinators and providers who directly assist families and individuals with disabilities. The focus of this manual is to provide easy-to-read information about available resources, and to provide immediate…

This manual was designed primarily for use by individuals with developmental disabilities and related conditions. It is hoped that it is also useful for families, as well as service coordinators and providers who directly assist families and individuals with developmental disabilities. The focus of this manual is to provide easy-to-read…

This manual was designed primarily for use by individuals with developmental disabilities and related conditions. It is hoped that it is also useful for families, as well as service coordinators and providers who directly assist families and individuals with developmental disabilities. The focus of this manual is to provide easy-to-read…

Presents information from interviews for Amish Study, study undertaken to understand, from rural family's perspective, experience of having received in-home family services. Describes barriers to service found by rural families and presents two cases from Amish Study. Considers need for outreach to rural families. (NB)

Results of a survey of the Handicapped Children's Early Education Program (HCEEP) indicated that projects within the program are diverse, offer services to meet individual children's and families' needs, and significantly involve families in the projects. More than one-third of these projects are administered by publicly supported educational…

The first annual report of the Disabled Children's Project, a 2-year project in Texas, provides information on project background, goal and objectives, approach, operations and accomplishments, and issues and problems. The project was designed to (1) provide training and support services to birth parents and foster parents of disabled infants and…

This report discusses the outcomes of a study that investigated the characteristics of 959 families participating in the Minnesota TEFRA program, a federal Medicaid option for children with disabilities which allows caregivers to purchase support needed to keep the children in the community. Findings indicate that families of children with special…

Federal Medicaid long-term care regulations do not require states to offer home and community-based service (HCBS) alternatives; rather, they are offered at the discretion of each state. The two most significant Medicaid HCBS programs are the Medicaid 1915(c) HCBS waiver programs and the Medicaid Title XIX personal care services (PCS) optional…

This report presents the findings of an examination of the costs, benefits, and characteristics of Sitter Services, a program in Scotland offering child care in the child's home to parents working atypical hours or respite care for families of children with developmental disabilities. The study also explored users' and providers' knowledge of the…

The document, in both English and French, describes a 2-year project in Guyana based on the principle of community-based rehabilitation (CBR), which stresses training local community residents as supervisors to provide training of rehabilitation workers and direct services to children with disabilities living in rural areas. The program provided…

This resource manual lists and describes research projects, federally funded between 1989-91, that focus on children, youth, and families living with chronic illness and disabilities. The projects were supported by the National Institute on Disability and Rehabilitation Research, the Bureau of Maternal and Child Health, the Child and Adolescent…