This study examined effects of resource perceptions and respite use in a theoretical model of adaptation with 72 parents of children with developmental disabilities. Amount and quality of respite services indirectly affected parental depression. Both quality and respite use were related to helpfulness of the parent's social network. The strongest…

The purpose of the Children's Project in Oregon was to provide services to five children (ages 5 to 12) with developmental disabilities whose families were experiencing stress. Each of the children had at least three disabilities and was placed outside the family home in a foster care home for various reasons. The project staff included each…

This site visit report describes the development and activities of the New Hampshire Family Support Network for families of people with developmental disabilities, and is based on a review of documents, interviews with key people, and participant observation. It begins with a brief history of family activism in New Hampshire, noting the early high…

This report discusses issues regarding the out-of-home placement of children with developmental disabilities and the need for permanency planning for these children. The document reports on a project which sought to: (1) discern practices of Colorado's Department of Social Services and Division for Developmental Disabilities which affect the…

The conference on "Support for Family Caregivers" reported in this document was designed to identify, encourage the development of, and disseminate information about effective approaches for strengthening the capacity of families to care for their impaired relatives. The first of two presentations in the opening plenary session reviews the needs…

This brief paper reviews six studies which examined out-of-home placement by Israeli parents of children with severe developmental disabilities. Implications for policy and practice are drawn, including the need for respite-care services, extended hours in schools, recreation programs, support services for parents, and training programs for…

South Carolina, a basically rural state, faces interrelated problems (housing, transportation, education, etc.) for 23,000 developmentally disabled individuals. These individuals are extremely vulnerable because of the lack of programs designed to meet their needs. Housing for the developmentally disabled remains very sparse and is often…

The report describes the program philosophy and accomplishments over the past decade of the Infant and Early Childhood Intervention Program (IECIP) of the Kansas University Affiliated Program (KUAP) at Parsons, Kansas, which has focused solely on delivering information and training to parents of developmentally delayed children. Topics discussed…

The study examined family support services currently utilized by families of individuals with developmental disabilities, and family support services seen as important by respondent families in the state of Hawaii. A total of 625 questionnaires were distributed via 24 agencies; 234 useable surveys were returned for a 39% response rate. The survey…

This booklet provides an overview of Alzheimer's disease along with a description of the disease, how to find out if someone has it, and how it affects adults with developmental disabilities. It also provides information on what to do and suggests where to seek help. Specific sections discuss: (1) the etiology of the disease; (2) symptoms of…

The findings of a 1978 project of the Massachusetts Developmental Disabilities Council on the need for respite care services and the various models for delivery of respite care are reported. Methodology included review of respite care regulations in 12 states, site visits and a survey of Massachusetts programs, and a survey of 339 families with…

A report of a project that established systems of respite care and training of parents who have developmentally disabled members in their home is presented. Attention is directed to project objectives, activities, and outcomes and to the following specific components: collection and analysis of data on factors promoting utilization and…

The Maryland Family Support Services Consortium is a 3-year demonstration project which developed unique family support models at five sites serving the needs of families with a developmentally disabled child (ages birth to 21). Caseworkers provided direct intensive services to 224 families over the 3-year period, including counseling, liaison and…

In focus group interviews, 39 parents of children (ages birth to 21 years) with developmental disabilities, emotional disorders, and technology-supported needs shared their perspectives regarding special needs, crisis situations, and parent/professional relationships. The purpose of the study was to determine what is necessary to keep children…

This study examined provision of services to children with developmental disabilities and their families in the context of requirements of Part H of the Individuals with Disabilities Education Act, which requires family centered services for infants and toddlers. Focus group discussions were held with health professionals at two sites in each of…