Background: Many family carers find the support they receive in respect of their child's challenging behaviour unhelpful. This study sought to identify carer perceptions of the ways in which support is unhelpful and how it could be more helpful. Methods: Thirteen mothers, caring for a child with intellectual disability and challenging behaviour,…

The manual discusses home based approaches to support families of developmentally disabled children. The first section presents in question and answer format the rationale for such support services. Succeeding sections address the following aspects: respite care, sitter/companion services; parent counseling, education, and training; in home…

This study examined effects of resource perceptions and respite use in a theoretical model of adaptation with 72 parents of children with developmental disabilities. Amount and quality of respite services indirectly affected parental depression. Both quality and respite use were related to helpfulness of the parent's social network. The strongest…

The purpose of the Children's Project in Oregon was to provide services to five children (ages 5 to 12) with developmental disabilities whose families were experiencing stress. Each of the children had at least three disabilities and was placed outside the family home in a foster care home for various reasons. The project staff included each…

In focus group interviews, 39 parents of children (ages birth to 21 years) with developmental disabilities, emotional disorders, and technology-supported needs shared their perspectives regarding special needs, crisis situations, and parent/professional relationships. The purpose of the study was to determine what is necessary to keep children…

This policy brief reports on a study of how families and agencies cope with growing waiting periods for community services for adults who have mental retardation or developmental disabilities (MR/DD). Preliminary information looks at reasons for long waits, characteristics of families waiting for services, and impact of adult members with MR/DD on…