Considerations related to the design and development of a respite care service delivery network for families of developmentally disabled persons are addressed. A five-component model for developing a respite care service network is presented, focusing on the need for competency-based service-provider training and parent involvement. Lastly,…

Basic information about respite care for individuals with disabilities and their families is presented in a question-and-answer format. The following questions are addressed: "What is respite?"; "Who needs respite services?"; "Who provides respite services?"; "What kinds of services are provided?"; "How…

Describes respite care, a temporary relief service for families with developmentally disabled members at home, as an essential element in preventing institutionalization of disabled persons. Major approaches for providing respite care are identified. The advantages and disadvantages of the different approaches are discussed. (Author/JAC)

This hearing addresses issues in the reauthorization of the Child Abuse Challenge Grant Program, which provides federal funds to match state funding for child abuse prevention programs, and reauthorization of the Temporary Child Care for Handicapped Children and Crisis Nurseries Act, which provides respite care for families with children with…

This report focuses on positive practices in providing support services to families of children with severe disabilities and chronic illnesses, based on visits to three sites in Maryland: the Family Support Program at the Kennedy Institute in Baltimore, the Coordinating Center for Home and Community Care, and Sick Kids Need Involved People (SKIP).…

The Family Support Project in Lansing, Michigan, provides a variety of family support services to help maintain severely mentally and severely multiply impaired children in their own communities, and whenever possible, in their own homes. Services offered include case management, family therapy, respite services, special needs purchases,…

This "Feature Issue" of the quarterly journal "Impact" presents 19 brief articles on family support systems in the United States for persons with developmental disabilities and their families. Emphasis is on provisions of Public Law 99-457. Articles include: "Family Support in the United States: Setting a Course for the…

This paper reports on several projects conducted in Georgia over the past 2 years that move the development of respite care services toward the goal of becoming a "cooperative, collaborative, and coordinated" effort. An overview of respite care in Georgia is provided as well as a summary of strategies used to provide such care. Emerging…

The site visit report describes the Family Support Services program run by the Calvert County (Maryland) Association for Retarded Citizens. The program's goal is to prevent any person 21 years of age or younger from being institutionalized. It provides respite care services, specialized family support, and integrated day care for approximately 50…

The manual discusses home based approaches to support families of developmentally disabled children. The first section presents in question and answer format the rationale for such support services. Succeeding sections address the following aspects: respite care, sitter/companion services; parent counseling, education, and training; in home…

Respite care provides relief or backup emergency care for families of individuals who are developmentally disabled. In sparsely populated rural areas, center-based urban models for service delivery and provider recruitment and training may be inappropriate. Las Cumbres Learning Services has developed a model for provision of respite care services…

The purpose of the Children's Project in Oregon was to provide services to five children (ages 5 to 12) with developmental disabilities whose families were experiencing stress. Each of the children had at least three disabilities and was placed outside the family home in a foster care home for various reasons. The project staff included each…

A survey of 20 health districts in England identified specialist services for individuals with intellectual disabilities and challenging behaviors. Great diversity was found in such services as specialized teams, staffed housing, assessment and short-term admission, and respite care facilities. Entitlement to appropriate treatment was more…

This site visit report describes the development and activities of the New Hampshire Family Support Network for families of people with developmental disabilities, and is based on a review of documents, interviews with key people, and participant observation. It begins with a brief history of family activism in New Hampshire, noting the early high…

This report discusses issues regarding the out-of-home placement of children with developmental disabilities and the need for permanency planning for these children. The document reports on a project which sought to: (1) discern practices of Colorado's Department of Social Services and Division for Developmental Disabilities which affect the…