ERIC Number: EJ1014811
Record Type: Journal
Publication Date: 2013-Jul
Pages: 13
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: N/A
Perceptions of Effective Support Services to Families with Disabled Children whose Behaviour is Severely Challenging: A Multi-Informant Study
McConkey, Roy; Gent, Clare; Scowcroft, Emma
Journal of Applied Research in Intellectual Disabilities, v26 n4 p271-283 Jul 2013
Background: Specialist short break services aim to provide enhanced support to family carers as a means of preventing children whose behaviours severely challenge from being placed in full-time residential care. To date, there is limited evidence as to the functioning and effectiveness of such services. Methods: In all, 17 children were selected at random from the 123 who were currently receiving services or had done so in the past 2 years from three specialist short break and community support services. For each child, interviews were conducted with a parent, the child's key worker within the service and the professional (mostly social workers) who had referred families to the services. Results: Five core themes captured the informants' common experiences: the complexities underlying the provision of services; the negotiations required to implement, maintain and adjust service packages; the relationships forged by the services; and the benefits they brought to children and families plus concerns about the future also featured. Conclusions: Specialist short break services can make a vital contribution to retaining children within their families, but under some important conditions which this study has identified: notably, the management of complexity, the formation of trusted relationships and creation of tangible benefits for the family and for the child. (Contains 1 figure.)
Descriptors: Behavior Disorders, Child Behavior, Disabilities, Family Programs, Severe Disabilities, Specialists, Parents, Home Visits, Respite Care, Residential Patterns, Foreign Countries, Semi Structured Interviews, Delivery Systems, Mental Retardation, Autism, Program Effectiveness, Interpersonal Relationship, Siblings, Family Environment
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: United Kingdom
Grant or Contract Numbers: N/A