Background: Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about death with people with intellectual disability facing terminal illness or bereavement. Method: Staff who support people with intellectual disability in the UK (n = 690)…

This study elicited the experiences of nurses caring for children with life-limiting conditions and their family, within a community based intellectual disability service. A qualitative descriptive research approach was adopted where purposeful sampling recruited 10 participants. Data was collected using one to one semi-structured interviews and…

We present, in a synthetic way, some of the main findings from five studies that were conducted in the field of empirical bioethics, using the Functional Measurement framework. These studies were about (a) the rationing of rare treatments, (b) adolescents' abortions, (c) end-of-life decision-making regarding damaged neonates, (d) end-of-life…

Functional Measurement (FM) has been applied to a variety of settings that can be considered as "extreme" settings; that is, settings involving participants with severe cognitive disabilities or involving unusual stimulus material. FM has, as instance, been successfully applied for analyzing (a) numerosity judgments among children as…

The purpose of this study was to analyze the attitudes of terminally ill patients toward death and dying. Four hospitals in Nigeria were randomly selected: University College Hospital, Ibadan; University of Benin Teaching Hospital, Benin City; the Lagos University Teaching Hospital, Lagos; and Igbinedion Specialist Hospital, Okada, Benin City.…

This article discusses how an art therapist working in a hospital palliative care unit has incorporated a ritual of hand casting to help bring closure to dying patients and family members who are grieving as death approaches. The finished hand sculptures depict the hands of the patients and, sometimes, of their loved ones. They are faithful and…

This study used retrospective interviews with 87 relatives to describe the experiences of patients who died by euthanasia or physician-assisted suicide (EAS) in the Netherlands. Most of the patients suffered from cancer (85%). The relatives were most often a partner (63%) or a child (28%) of the patient. Before explicitly requesting EAS most…

Objective: The authors examined psychiatric residents' attitudes, perceived preparedness, experiences, and needs in end-of-life care education. They also examined how residents conceptualized good end-of-life care and dignity. Methods: The authors conducted an electronic survey of 116 psychiatric residents at the University of Toronto. The survey…

Few resources seem to be available to support school communities that have a child whose death is anticipated. The present article draws on the experiences of school staff and special education employees who have been involved in New Zealand school communities where a child was terminally ill and died. These experiences could help other school…

The vast majority of the 220,000 Canadians who die each year, principally of old age and progressive ill health, do not have access to specialized hospice or palliative care. Hospice and palliative care programs are unevenly distributed across Canada, with existing programs limited in capacity and services varying considerably across programs.…

Reports on abandoned study examining potential benefits of psychotherapy to terminal cancer patients. Preliminary feasibility study found physicians' attitudes toward their dying patients as reformed and progressive. Interest shown by physicians did not translate into tangible research effort in spite of active pursuit by investigator over period…

Notes that burnout among caregivers of the terminally ill is related to the various ways in which people meet their death. Provides examples of reactions to different types of death and makes suggestions for identifying and coping with caregiver burnout throughout the spectrum of individuals, relationships, and modes of death. (Author/NB)

Used Hall and Van de Castle dream content scales to score 104 dreams from 9 terminally ill patients. Found subjects had significantly fewer characters, activities, interactions, color descriptions, and less emotional content in their dreams than physically healthy subjects. Dream content suggests adaptive withdrawal and process of social and…

Examined 25 dream reports of individuals in Palliative Care Unit. Content analysis of dream reports supports hypothesis that continuity exists between dreaming and waking experience. Results did not indicate that themes of death and aggression, negative emotion, or infant and child characters were more prevalent among the dying. (Author/NB)

Interviewed 100 terminally ill cancer patients to examine farewells made before the interview and those desired and planned but not yet completed. Most patients (81 percent) desired to farewell; most wanted farewell to occur late in course of their dying. Prominent in preferred styles of farewells were the gift, conversation, and letter.…