Health-related quality of life (HRQOL) is increasingly being considered in the management of patients with various conditions. HRQOL instruments can be broadly classified as generic or disease-specific measures. Several generic HRQOL instruments in different languages have been developed for paediatric populations including the Pediatric Quality…

Researchers commonly report that families of children with autism spectrum disorder (ASD) experience more parenting stress than families of typically developing (TD) children or those diagnosed with other disabilities [e.g., Down syndrome (DS), cerebral palsy, intellectual disability]. The authors reexamined the research using comparison groups to…

This study had two main objectives: first, to examine the direct and indirect effects, via social support, of caregiving burden on the adaptation outcomes of children/adolescents with cerebral palsy and their parents; and second, to assess the invariance of such models in clinical vs. healthy subsamples. Participants were 210 dyads of…

This research addresses the link between parental competence, specifically the characteristic of parental knowledge, and its influence on their child with a disability's participation in age-appropriate activities through their influence on the physical and social home environment. This study examined pathways through which parents mediate…

This purpose of this study was to examine the perceptions of parents with children with disabilities towards their children and how Mexican society treats their children. Using a focus group with a translator four middle class parents were interviewed about their children with disabilities in Guadalajara, Mexico. At a later date two other parents…