Background: Co-research with people with intellectual disability is a distinct form of patient and public involvement (PPI). This systematic review summarize published studies and protocols to report on the process of co-research in social and healthcare research. Method: Relevant studies were identified using electronic searches on ASSIA,…

Using principles of community-based participatory research we developed a new theory-based measure of health-related quality of life (HRQOL) for individuals with intellectual disability (ID). We recruited adults with ID (n = 129) to take part in interviews and review successive versions of HRQOL items. Critical input about content and…

Critical participatory action research is a form of community engagement and knowledge generation which, when represented semiotically, may promote social transformation. In this paper, I describe a critical participatory action research project I undertook as a liberation psychologist and researcher in (post)colonial Jamaica. I summarise a…

This study explored perspectives of therapist's role in care coordination between early intervention (EI) and medical services, and identified strategies for improving service delivery. Fifty adults participated in one of six focus groups. Participants included parents, pediatricians, and therapists working in hospital and EI programs. Structured…

This introductory article discusses the benefits of participatory action research (PAR), including the empowerment of participants in research and the research process, the difficulties PAR presents, and summarizes following articles in a special series on the facets of PAR. (CR)