The diagnosis of autism is often delivered solely to the parents, a practice that forces them to confront the dilemma of whether, when and how they should disclose it to the child. The present study seeks to probe deeper into the phenomenon of diagnosis disclosure and lead to a clearer understanding of the dilemmas parents? face. This article…

Information and support for families of children on the autism spectrum is limited in south-east Europe. A three-year project, "Equity and Social Inclusion Through Positive Parenting" (ESIPP), was established to develop and provide parent education (PE) in autism for families in Croatia, Cyprus and North Macedonia. This paper presents…

Psychiatric/neurodevelopmental diagnoses have expanded in number and scale with increased influence over matters of education and upbringing. One of the most common psychiatric diagnoses among children and adolescents is attention deficit hyperactivity disorder (ADHD). The dominant perspective of ADHD is biomedical, where ADHD is defined as a…

Children with psychiatric diagnoses such as attention-deficit hyperactivity disorder/attention-deficit disorder and autism spectrum disorder have often been the topic of heated debate between those who favour the view that the global increase in children who receive these diagnoses is the result of pathologizing and stigmatizing discourses and…

Parents of children with autism spectrum disorder (ASD) face challenges in accessing diagnostic and treatment services; these challenges vary by race, ethnicity, and culture. This systematic review examines parental perceptions of ASD within Latinx and Black American communities. Findings indicate that interconnections with family and religious…

This article draws parallels between the concept of "Black lives matter" and the efforts of caregivers to advocate for the value of the lives of their children who have disabilities. The authors identify three key concepts that undergird their argument: first, the concept of systemic bias as built in to the hierarchical valuing of…

Little previous research has elucidated the everyday experiences of autistic girls or their families. This study used qualitative in-depth interviews to explore mothers' experiences of the diagnosis, presentation and impact of caring for a daughter with autism. Nineteen women with autistic daughters (aged between 7 and 18) participated in the…

Autism affects over 2% of the school population in England. Education has proven to be an effective intervention strategy that improves the quality of life of children with autism and their families. However, governmental austerity policies have increased disadvantage in coastal areas of England with a detrimental impact on people with…

The aim of this study was to understand the diagnostic, service and lived experiences of families affected by ASD in Southeast Europe. A total of 758 caregivers from Albania, Bulgaria, Croatia and Turkey were surveyed from 2013 to 2015 about characteristics of the child with ASD; service encounters; and caregiver perceptions. The average age at…

An estimated 13 percent of children in the U.S. ages 3-21 have special needs. The Latino population is the largest minority group in the United States, and in this group there is an increasing number of Latino parents with children with Autism Spectrum Disorder (ASD). The problem is that the combined negative effects of Latinos occupying three…

Children with autism spectrum disorders (ASD) have unique developmental and behavioral phenotypes, and they have specific challenges with communication, social skills, and repetitive behaviors. At this time, no single etiology for ASD has been identified. However, evidence from family studies and linkage analyses suggests that genetic factors play…

Examines variables associated with hospital diagnosis of child abuse and with the proportion of cases subsequently reported to child protection agencies. Reveals that, compared to other agencies, hospitals identified children who were Black and had more serious injuries. Asserts that reporting of child abuse is biased by class and race. (KH)

This article discusses diagnostic overshadowing, a robust bias that negatively affects the accuracy of clinicians' judgments about concomitant mental illness in persons with mental retardation and mental illness. Reviewing 12 studies, it examined moderators of diagnostic overshadowing and found clinician's cognitive complexity negatively affects…

This book tells the stories of eight people with above average to highly gifted levels of intellect, who also have significant, previously unrecognized and undiagnosed, learning disabilities. Their discovery of their true abilities and gifts after years of humiliation within the educational system and the trials of daily life is detailed. The…

Through parents' accounts, this book provides information about the experience of having an autistic child in the family. It examines the nature of autism, the problems it presents, and the various ways that parents cope with the disorder. Chapter 1 discusses the experiences of families with autistic members and the sequence in which they were…