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Direct linkCohen, Shana R.; Miguel, Jessica; Trejos, Jessica – Journal of Autism and Developmental Disorders, 2023
To understand the ASD diagnosis and treatment pathways for US families, N = 38 Mexican-heritage mothers were interviewed about how and when they obtained an ASD diagnosis for their children. Most children (84%) were diagnosed between two and three years old. One-third of mothers reported receiving four to seven referrals before diagnosis. Mothers…
Descriptors: Autism Spectrum Disorders, Mexican Americans, Mothers, Children
Marion A. Clough – ProQuest LLC, 2024
Visual impairment affects an estimated 19 million children under 15 globally, with 12 million of them having vision issues that could be diagnosed and corrected, leaving 7 million children under 15 with significant visual impairments (WHO, 2021). The impact of receiving a visual impairment diagnosis can affect many aspects of a caregiver's life…
Descriptors: Children, Visual Impairments, Quality of Life, Anxiety
May, Cynthia P.; Dein, Anthony; Ford, Jaclyn – Applied Cognitive Psychology, 2020
Flashbulb memories are vivid and salient memories for the moment one hears about a surprising, emotional, and significant event. The current research examined flashbulb memories for a loved one's medical diagnosis, focusing on individual and situational factors associated with memory development and endurance over time. An online survey collected…
Descriptors: Memory, Clinical Diagnosis, Influences, Mothers
Catubigan, Robie V. – Discourse and Communication for Sustainable Education, 2023
The birth of a child is the beginning of a woman's motherhood. It is genuinely illuminated in her raising and rearing responsibilities. This study explores the understanding and experiences of Mansaka mothers about autism before and after diagnosis. This qualitative phenomenological inquiry employed face-to-face semi-structured interviews with…
Descriptors: Foreign Countries, Mothers, Autism Spectrum Disorders, Inclusion
Hyeyoung Kim; Sohyun An Kim; Han Lee; Robin Dodds – Journal of Autism and Developmental Disorders, 2024
Since autism diagnosis is directly linked to the availability of supportive services, identifying best practices for early diagnosis of autism has long been a concern of professionals and families. Meanwhile, studies show persistent racial disparities in autism diagnosis. Although numerous clinical diagnostic guidelines have been published, there…
Descriptors: Asians, Immigrants, Mothers, Autism Spectrum Disorders
Download full textEmrah Marul; Hasan Hüseyin Yildirim – International Journal of Contemporary Educational Research, 2023
The aim of this study, which was carried out according to the life story/narrative research design, which is one of the qualitative research methods, is to examine the life story of a mother living with a child with an additional disability. In this context, a 5-year-old child with deficiencies such as hearing loss, autism and ADHD and his mother…
Descriptors: Mothers, Children, Disabilities, Young Children
Rachel Cummings; María José Luengo-Prado – Federal Reserve Bank of Boston, 2023
We document the characteristics of children and young adults identified in the Panel Study of Income Dynamics as having a learning disability and study whether legislative changes in diagnosis criteria have had a noticeable effect determining who receives a diagnosis. We further document that children and young adults identified as a having a…
Descriptors: Children, Young Adults, Individual Characteristics, Learning Disabilities
Reed, Phil; Osborne, Lisa A. – Autism: The International Journal of Research and Practice, 2019
The current study assessed whether reactions to diagnosis are associated with health status for mothers of children with autism spectrum disorder at the time of diagnosis, and whether such diagnostic-reaction resolution status is associated with changes in health status over time. A total of 84 mothers of children newly diagnosed with autism…
Descriptors: Autism, Pervasive Developmental Disorders, Mothers, Children
Howard, Amanda R. Hiles; Dandy, Kristina; Martino, Maria; Howard, John D.; Cross, David R. – Measurement and Evaluation in Counseling and Development, 2019
The Attachment Behavior Checklist is a promising, but unvalidated, measure designed to assess attachment disturbances. Confirmatory and exploratory factor analyses were conducted. Results revealed a 5-factor solution best fit the data. Individual differences in the factors were examined. The Child Behavior Checklist was used to determine…
Descriptors: Attachment Behavior, Check Lists, Psychometrics, Child Behavior
Harry, Beth; Ocasio-Stoutenburg, Lydia – Research and Practice for Persons with Severe Disabilities, 2021
This article draws parallels between the concept of "Black lives matter" and the efforts of caregivers to advocate for the value of the lives of their children who have disabilities. The authors identify three key concepts that undergird their argument: first, the concept of systemic bias as built in to the hierarchical valuing of…
Descriptors: Advocacy, Parent Role, Disabilities, Children
Yan, Weili; Siegert, Richard J.; Zhou, Hao; Zou, Xiaobing; Wu, Lijie; Luo, Xuerong; Li, Tingyu; Huang, Yi; Guan, Hongyan; Chen, Xiang; Mao, Meng; Xia, Kun; Zhang, Lan; Li, Erzhen; Li, Chunpei; Zhang, Xudong; Zhou, Yuanfeng; Shih, Andy; Fombonne, Eric; Zheng, Yi; Han, Jisheng; Sun, Zhongsheng; Jiang, Yong-hui; Wang, Yi – Autism: The International Journal of Research and Practice, 2021
The recent adaptation of a Chinese parent version of the Autism Spectrum Rating Scale showed the Modified Chinese Autism Spectrum Rating Scale to be reliable and valid for use in China. The aim of this study was to test the Modified Chinese Autism Spectrum Rating Scale for fit to the Rasch model. We analysed data from a previous study of the…
Descriptors: Psychometrics, Parent Attitudes, Autism, Pervasive Developmental Disorders
Fowler, Karen; O'Connor, Cliodhna – Autism: The International Journal of Research and Practice, 2021
Little previous research has elucidated the everyday experiences of autistic girls or their families. This study used qualitative in-depth interviews to explore mothers' experiences of the diagnosis, presentation and impact of caring for a daughter with autism. Nineteen women with autistic daughters (aged between 7 and 18) participated in the…
Descriptors: Autism, Pervasive Developmental Disorders, Mothers, Daughters
Rubenstein, Eric; Edmondson Pretzel, Rebecca; Windham, Gayle C.; Schieve, Laura A.; Wiggins, Lisa D.; DiGuiseppi, Carolyn; Olshan, Andrew F.; Howard, Annie G.; Pence, Brian W.; Young, Lisa; Daniels, Julie – Journal of Autism and Developmental Disorders, 2017
Autism spectrum disorder (ASD) diagnosis relies on parent-reported and clinician-observed instruments. Sometimes, results between these instruments disagree. The broader autism phenotype (BAP) in parent-reporters may be associated with discordance. Study to Explore Early Development data (N = 712) were used to address whether mothers with BAP and…
Descriptors: Autism, Pervasive Developmental Disorders, Genetics, Mothers
Reed, Phil; Giles, Ashleigh; White, Shonagh; Osborne, Lisa A. – Autism: The International Journal of Research and Practice, 2019
Reaction to a child's diagnosis can strongly affect the parent, but little is known about the aspects of the diagnostic process associated with such reactions. The pre-diagnostic levels of anxiety, depression, and parenting stress of 67 volunteer mothers of children subsequently diagnosed with autism spectrum disorder were assessed, along with the…
Descriptors: Mothers, Mother Attitudes, Parent Child Relationship, Clinical Diagnosis
Tekinarslan, Ilknur Çifci – Journal of Education and Training Studies, 2018
Mothers of children diagnosed with Autism Spectrum Disorder (ASD) face various burdensome challenges in many stages of their lives. This study aimed to explore the experiences of Turkish mothers whose children were diagnosed with ASD in terms of the emotions they felt and the challenges they encountered before and after the diagnosis. 17 mothers…
Descriptors: Autism, Pervasive Developmental Disorders, Barriers, Mothers
