This study examined the agreement of perceived health-related quality of life (HRQOL) between caregivers and autistic children and adolescents (n = 133, 5-12 years) using the Pediatric Quality of Life Inventory Generic Core Scales, Fourth Edition (PedsQL 4.0). Results reveal good to excellent agreement over this age range across the total,…

Background: Multiple disabilities represent separate entities that cannot be reduced to the sum of disabilities or the main disability. This study compared the health-related quality of life (HRQoL) of children and adolescents with multiple disabilities and those with one developmental disability. We further assessed how comorbidities and…

Our purpose in this study was to validate the Quality of Life for Children with Autism Spectrum Disorder scale. We first conducted an exploratory factor analysis to examine the factor structure. Results suggested that a three-factor model (Interpersonal Relationships, Self-Determination, and Emotional Well-Being) should be retained. Next, we…

The problem addressed in the research was that many individuals were not diagnosed with attention deficit hyperactivity disorder (ADHD) until they were adults. The purpose of the study was to examine the experiences and beliefs of participants regarding the management of ADHD and the impact that experiences may or may not have regarding the…

Purpose: Children suffering from cancer or cardiovascular disease, who need extended periods of treatment in hospitals, are subjected to multiple hardships apart from the physical implications, for example, experienced isolation and disrupted social and academic development. This has negative effects long after the child's recovery from the…

Arts programs have much value to offer children and educators alike, and so it is important to seek avenues for providing these enriching opportunities. Emerging from the collective and personal traumas experienced during the COVID-19 pandemic, arts programming may play an especially important role in welcoming students back to schools,…

Previous studies have reported reduced quality of life in autism. Improving quality of life for autistic people is, therefore, a key priority for clinical research and practice. However, the relative impact of core autism traits (e.g. social-communication difficulties), as compared to associated mental health symptoms (e.g. anxiety, depression) on…

It is my thesis that the Child Theology Movement is a new and significant aspect of cultural change within the Christian church that will have resonance with the wider community, affecting parenting behaviour as well as spiritual and religious education. This paper examines some of the aspects of children's spirituality that link to and have value…

The objective of this study was to examine quality of life of children with profound disabilities from the perspective of special education staff. Due to the nature of profound level cognitive disabilities, children with these issues are unable to respond to traditional paper and pencil quality of life assessments. Therefore, the perspectives of…

The objective was to determine the interest and psychometric properties of a new QOL self-assessment questionnaire suitable for children 8-12 years old measuring alpha, beta and gamma changes: the "Inventaire Systemique de Qualite de vie pour Enfants" (ISQV-E[C]). This was a cross-sectional validation study. 288 children have completed…

Childhood-onset psychiatric disorders, such as attention deficit hyperactivity disorder (ADHD), autism spectrum disorder (ASD), mood disorders, obsessive compulsive spectrum disorders (OCSD), and schizophrenia (SZ), affect many school-age children, leading to a lower quality of life, including difficulties in school and personal relationships that…

In this article, the author talks about the lessons she and her colleagues had learned when they went to the Pikler Institute in Budapest, Hungary. The Pikler Institute is a residential nursery founded by Dr. Emmi Pikler in 1946. In order to improve the quality of children's relationship with adults, they need to feel that: (1) he/she belongs; (2)…

The present study based on World Health Organization quality of life (WHOQOL-BREF) scale to examine quality of life of the caregivers caring for their children/adolescents with intellectual disabilities in Taiwan, and the factors contributing to their quality of life. Structured interviews were conducted with 597 caregivers of children/adolescents…

Past research has shown that children with autism and their families have compromised quality of life (QOL) in several domains. This study examined QOL and parental concerns in children with autism during early childhood, childhood, and adolescence compared to children with Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder…

Findings reported here are from a secondary analysis of in-home, semistructured interviews with a subsample of 9 participants from a larger study examining the perspectives of parents of children with Asperger Syndrome (AS) concerning what contributes to and detracts from their children's quality of life at school. Audiotaped interview data used…