Raising a disabled child can be highly stressful for the parents, and it can negatively impact their quality of life. Therefore, in order to minimise such problems and difficulties, the parents are in need of resilience. The present study aimed to evaluate the role of perceived stress, social support, and resilience in predicting the quality of…

Background: Siblings of children with Prader-Willi syndrome (PWS) may be at elevated risk for poor psychological adjustment (Mazaheri, M. M., Rae-Seebach, R. D., Preston, H. E., Schmidt, M., Kountz-Edwards, S., Field, N., Cassidy, S., Packman, Wet al. (2013). The impact of Prader-Willi syndrome on the family's quality of life and caregiving, and…

The aim of this study, which was carried out according to the life story/narrative research design, which is one of the qualitative research methods, is to examine the life story of a mother living with a child with an additional disability. In this context, a 5-year-old child with deficiencies such as hearing loss, autism and ADHD and his mother…

Subclinical traits of autism were measured in children with somatic symptom disorder (SSD, n = 28) and compared with age-matched controls (n = 26) using the Autism Spectrum Quotient (AQ) children's version. The KINDL[superscript R] quality of life questionnaire was used to assess functional disability. Although there was no significant group…

The participation of children with disabilities in leisure activities is more limited than that of their peers without disabilities, despite the recognised social and emotional benefits derived from leisure activities. The aim of this study was to understand the difficulties encountered by organisational staff responsible for such activities and…

A child's disability affects not only that child but also their caregivers. This study compares the quality of life (QoL) of Saudi mothers (primary caregivers) of children with Cerebral Palsy (CP) and Down Syndrome (DS) and mothers whose children do not have a disability, and explores its relationship with socioeconomic status. Two hundred mothers…

Autistic children have problems in cognitive and motor skills areas. This study investigated the effects of motor and cognitive problems on daily living activities and quality of life in autistic children. Thirty-two autistic children were included in the study. Thirty typically developing children were selected as the control group. The Bruininks…

With the rapid increase in the rate of children diagnosed with Autism Spectrum Disorder (ASD), there has been a surge in treatment interventions and outcome measures. Treatment interventions consist of evidence-based practices and programs that lack scientific validation. Parents' selection of a treatment or multiple treatments is often based on…

Family outcomes are important to the provision of services because families are increasingly considered as the primarily support unit for children with developmental disabilities. With emphasis on positivity and multidimensionality of the life of families who have children with disabilities, this study aimed to expand the applicability of the…

Background: Caring for a child with a disability can be a unique and challenging experience, with families often relying on informal networks for support. Often, grandparents are key support resources, yet little is known about their roles and experiences. Reporting on data collected in a larger Australian study, this article explores…

Background: Families of children with disabilities experience extra financial strains, and mothers are frequently unable to participate in paid work because of caregiving obligations. Methods: A mailed survey and follow-up phone calls were used to gather data about mother's health, workforce participation and barriers to inclusion in the workplace…

Background: Family quality of life (FQOL) has emerged as an important outcome of service delivery for individuals with disabilities and their families. The purpose of this review was to explore the disparity of scale development approaches between families with children with disabilities and families from other populations and identify strengths…

Participation is essential to children's development. Children with disabilities are at risk for restricted participation. Despite wide use of the word participation, the definition remains vague. The eight steps of analysis by Walker and Avant (2005) were used to guide the concept analysis. The uses and defining attributes of participation were…

Research indicates that families of children with disabilities are at risk for a lower quality of life than families of typically developing children, as the impact that a child with a disability has on a family's quality of life (FQOL) is both substantial and complex (Zuna, Selig, Summers, & Turnbull, 2009b; Zuna, Summers, Turnbull, Hu &…

With more children and young adults with severe disabilities in today's general education classrooms, SLPs and other professionals must be ready to support their students' communication skills with effective AAC. They'll get the proven strategies they need with this intervention guide from top AAC experts, ideal for use as an in-service…