22q11.2 deletion syndrome is a rare multisystem genetic disorder with over 200 associated characteristics, occurring in various combinations and severity. Extensive biomedical research has been undertaken on 22q11.2 deletion syndrome, however, there is a dearth of research on families' experiences of managing a family member with this condition.…

Background: Siblings of children with intellectual disability have unique family experiences, varying by type of disability. Methods: Parents of children with Down syndrome (156) or with Rett syndrome (149) completed questionnaires relating to sibling advantages and disadvantages, experiences of holidays and recreation, and perceived availability…

Background: Sleep is an important physiological need for children with intellectual disabilities and their mothers. The present study aims to obtain detailed information on the factors that are hindering and facilitating the sleep quality of children with intellectual disabilities and their mothers. Method: Twenty-one mothers of children with…

In the present study, the purpose was to examine the relation between the social support levels, family indomitableness levels and the life satisfaction levels perceived by parents of children with disabilities. The Descriptive-Correlational Research Model was used as the model in the study. The parents of 231 children with disabilities…

Approximately 50% of autistic children experience high anxiety. Intolerance of uncertainty (tendency to react negatively to uncertain situations) is a key mechanism in the development and maintenance of anxiety. This study aimed to provide a descriptive, thematic analysis of the impact on uncertainty on the daily lives of autistic children and…

Parents of children with autism spectrum disorder (ASD) are often at greater risk of experiencing stress and lower quality of life, in comparison to parents of typically developing (TD) children and other developmental disabilities. Despite vast literature on parental experiences in Western countries, little is known about this topic in Eastern…

All children, particularly those with special needs, have been adversely affected by the COVID-19 pandemic. This qualitative study explored the experiences of children with learning disabilities (LD) during the COVID-19 Pandemic. A criterion sample of twenty-three children ages 7 to 10 (M = 8.56, SD = 1.12) from Turkey was interviewed. Thematic…

Children and adolescents (henceforth "children") with both attention-deficit/hyperactivity disorder (ADHD) and anxiety experience greater difficulties than children with either alone, though qualitative methodologies are yet to be used to understand the challenges this population experiences. We aimed to explore parent-reported daily…

This study explored the daily routines of caregivers and the coping behaviors of both children and caregivers during the novel coronavirus (COVID-19) global pandemic. We collected data from ten caregivers and their children through caregiver and child interviews, and a caregiver survey in the Summer of 2020. We used descriptive statistics, and…

The primary objective of this study was to identify the profiles of families of children with autism spectrum disorder (ASD) without intellectual disability (ID) based on several risk indicators: sociodemographic and emotional indicators, parental stress, confidant social support, and coping strategies. A second aim was to determine the…

Background: Evidence and awareness of the importance of culturally adapting psychosocial interventions is growing. The aim of this paper is to systematically review studies on cultural adaptations of psychosocial interventions for parents and their children with intellectual disabilities, in low- and middle-income countries. Methods: Studies were…

Purpose: The present study aims to examine to what extent the group guidance program affects the levels of couple burnout, occupational burnout and work engagement of fathers with children with autism spectrum disorder (ASD). Research Methods: In this research, a random pattern with a pre-test post-test control group in a quasi-experimental design…

Anxiety is a common co-occurring condition in autism and impacts quality of life of autistic individuals and their families; autistic individuals who speak few or no words represent an under-researched group. This qualitative study aimed to understand more about parental recognition and management of anxiety in autistic individuals who speak few…

The aim of the research project is to present parents' perceptions and experiences related to home education during the coronavirus pandemic, and the ways of coping with difficult situations, taking into account sociodemographic factors. At the end of March and beginning of April this year, a survey was conducted on a group of 278 parents living…

During the first and second months after school lockdown in spring 2020, the author and others conducted surveys in the United States of children aged eight through thirteen and of parents with children the same ages. Contrary to many expectations, they found the children less anxious than they had been prior to the pandemic. The children were…