Children in medical facilities encounter systemic barriers to education despite legal mandates. This study aimed to enhance educational opportunities by addressing inconsistencies through research-based strategies. The study adopted a dual strategy, positing that proactive organizational readiness measures alongside the implementation of an…

Hope has a powerful influence on individuals, especially those battling critical illness. The problem is the Make-A-Wish wish-granting experience was never designed to improve the health care of children being granted a wish; thus, hope was a mere by-product of the wish experience. The purpose of this qualitative phenomenological study was to…

This paper investigates the educational experiences of children and adolescents diagnosed with RYR1-related diseases, a spectrum of congenital myopathies affecting muscle function. Despite these conditions typically sparing cognitive abilities, they profoundly impact physical capabilities, presenting challenges in school environments such as…

The public health problem of ensuring that teens and preteens receive the HPV vaccination series justified this study, using a convenience sample (N=122) of parents, 68 of whom were English-speaking parents (ESP) and 54 were Spanish-speaking parents (SSP). Among ESP, 94.1% (n=64) were females and 5.9% (n=4) were males. Among SSP, 98.1% (n=53) were…

Purpose: Sickle cell disease (SCD) is a genetic blood disorder that increases the risk for recurrent painful episodes. Parents' knowledge regarding SCD management is poor, leading to poor symptom management and lower Health Related Quality of Life (HRQOL) in children with SCD. The purpose of this study was to examine the effects of a parent…

The population of distance caregivers of people with dementia/Alzheimer's disease has not been extensively researched. This research study focused on exploring the lived experience of people caring for someone with dementia/Alzheimer's disease from a distance (defined as 2 or more hours away) to help shed light on this caregiving population. Ten…

Children and youth with special health care needs are impacted both physically and psychologically by their medical condition. Furthermore, parents of children with special health care needs experience increased symptoms of anxiety related to their child's condition. Literature suggests the negative impact may be lessened by providing…