The lives of caregivers can be deeply impacted by having a child with a developmental disability (DD). To offset those impacts, caregivers may engage in accommodations, or strategies to bolster everyday functioning. The nature and extent of these accommodations can provide insight into how the family is doing and what supports are needed from a…

The purpose of this qualitative phenomenology design was to describe the experiences of caregivers to adults with I/DD in the State of Texas. The theory guiding this study was the social constructivism framework which focused on how language and culture frame how individuals communicate, experience, and understand reality. In this study, the…

This study examined the effectiveness of caregiver consultations in caregiver's child's play therapy process through a program evaluation lens. Archival data was used from a counseling clinic located in the central southwestern United States. Quantitative data was collected from caregiver who filled out assessments (PSI-4 and CBCL) about their…

Background: This article aims to understand moral distress in carers of people with an intellectual disability during the COVID-19 pandemic. Method: Nine staff carers of seven people with an intellectual disability, who had been participants of the IDS-TILDA study in Ireland, who died during the COVID-19 pandemic participated in in-depth,…

This paper contributes to the scarce literature on factors affecting EdTech use in households. These factors were considered through exploratory mixed-methods analyses of cross-sectional data on Kenyan girls and caregivers, captured during the COVID-19 pandemic. Quantitative analysis of the child dataset (n = 544) suggested the importance of both…

Individuals with Down's syndrome rely on caregivers to support lifestyle behaviour change. It is therefore important to understand how caregivers put health recommendations into practice. Through conducting semi-structured interviews, the present study sought to understand the facilitators and barriers that caregivers faced when implementing…

Background: The present study aimed to explore the experiences and needs of direct support staff during the initial stage of the COVID-19 lockdown in the Netherlands. Method: Overall, eleven direct support staff were recruited from five intellectual disability services to participate in this descriptive qualitative study. They recorded 34 audio…

Despite the importance of family-centered practice in the Individuals with Disabilities Education Act Part C, a federally funded program for birth to two-year-old children with disabilities, there is a lack of research on Asian families who participate in early intervention in the U.S. This study examined the experiences of two Korean families and…

This study explores how caregiver-child scientific conversation during storybook reading focusing on the challenges or achievements of famous female scientists impacts preschoolers' mindset, beliefs about success, and persistence. Caregiver-child dyads (N = 202, 100 female, 35% non-White, aged 4-5, [function] = 0.15) were assigned to one of three…

Caregivers play an integral role in a child's academic development, including their literacy development (Compton-Lilly et al., 2019; Cunningham, 2021; Edwards, 2004; Edwards, 2016; Smith, 2020; Volk, 2021). One way caregivers have supported their children's literacy development is by assisting them with school activities at home. While some…

Background: Up to 40% of stroke survivors acquire aphasia and require long-term caregiver assistance after discharge from the hospital. Caregivers assume multiple roles as they help people with aphasia to access outpatient rehabilitative care in an increasingly person-centred model of care. Examining caregiver roles and how different stakeholders…

Many people with intellectual disabilities (ID) depend on caregivers for pain identification and pain management decisions. Therefore, the aim was to explore caregivers' experience with pain in Prader-Willi syndrome (PWS), Williams syndrome (WS), and Fragile-X syndrome (FXS). A questionnaire was developed to gather third-party reporting of mainly…

Home-based child care is a widely used form of child care. However, little is known about the heterogeneous group of caregivers that make up the home-based provider workforce and how they view themselves and their work. This study used role theory as a framework for understanding how providers view and navigate their roles. Qualitative interviews…

Early intervention (EI) services--including but not limited to speech, physical, occupational, and mental health therapies--have been proven to significantly benefit young children's development, shaping their readiness for school and offering pivotal support for caregivers. However, racial disparities persist in identification for and access to…

Introduction: Quality services for persons with intellectual and developmental disabilities and mental health needs (IDD-MH) requires timely access to services that are responsive to their needs and preferences. This study explores virtual service delivery from the perspectives of family caregivers of persons IDD-MH during the onset of the…