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Direct linkNanda de Knegt – Journal of Developmental and Physical Disabilities, 2023
Many people with intellectual disabilities (ID) depend on caregivers for pain identification and pain management decisions. Therefore, the aim was to explore caregivers' experience with pain in Prader-Willi syndrome (PWS), Williams syndrome (WS), and Fragile-X syndrome (FXS). A questionnaire was developed to gather third-party reporting of mainly…
Descriptors: Pain, Intellectual Disability, Identification, Caregiver Role
