ERIC Number: EJ1415290
Record Type: Journal
Publication Date: 2024
Pages: 12
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-0162-3257
EISSN: EISSN-1573-3432
Screening, Diagnosis, and Intervention for Autism: Experiences of Black and Multiracial Families Seeking Care
Amy S. Weitlauf; Alexandra Miceli; Alison Vehorn; Yewande Dada; Theodora Pinnock; Joyce W. Harris; Jeffrey Hine; Zachary Warren
Journal of Autism and Developmental Disorders, v54 n3 p931-942 2024
Purpose: Despite advances in screening and awareness, Black and multiracial families continue to experience challenges when seeking an autism diagnosis for their children. Methods: We surveyed 400 Black and multiracial families of young children with autism from an existing research database in the United States about their retrospective diagnostic experiences. We gathered quantitative and qualitative data and engaged in iterative coding to understand timing and content of first concerns, families' experiences of care providers and systems, and the impact of race and culture on accessing care. Results: Families provided examples of early developmental concern and described provider, systemic, and cultural barriers and facilitators to care. Families also provided insight into the influence of culture and made recommendations on how the medical system could better care for Black and multiracial families of children with autism. Conclusions: Results add to a growing body of literature supporting the need for culturally sensitive and accessible care related to developmental monitoring, diagnosis, and follow-up care for Black and multiracial children.
Descriptors: Autism Spectrum Disorders, Minority Groups, African American Family, Barriers, Clinical Diagnosis, Racial Factors, Cultural Influences, Parent Attitudes
Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://bibliotheek.ehb.be:2123/
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: Health Resources and Services Administration (HRSA) (DHHS)
Authoring Institution: N/A
Grant or Contract Numbers: H6MMC33236