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Kelly, Kathyan; Margaret, Haigh; McCarron, Mary; McCallion, Philip; Burke, Eilish; Wormald, Andrew David – Journal of Applied Research in Intellectual Disabilities, 2023
Background: This article aims to understand moral distress in carers of people with an intellectual disability during the COVID-19 pandemic. Method: Nine staff carers of seven people with an intellectual disability, who had been participants of the IDS-TILDA study in Ireland, who died during the COVID-19 pandemic participated in in-depth,…
Descriptors: Intellectual Disability, COVID-19, Pandemics, Death
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Grindrod, Andrea; Rumbold, Bruce – Journal of Applied Research in Intellectual Disabilities, 2017
Background: There is broad consensus within the disability field that the end-of-life care offered to people with intellectual disabilities should be of a quality consistent with that advocated by contemporary palliative care. In practice, however, various barriers are encountered when applying palliative care strategies to the end-of-life care of…
Descriptors: Foreign Countries, Death, Medical Services, Intellectual Disability