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Direct linkHuang, Yunhe; Arnold, Samuel R. C.; Foley, Kitty-Rose; Trollor, Julian N. – Journal of Autism and Developmental Disorders, 2022
Pathways to diagnosis in adulthood are poorly understood. Even less is known about undiagnosed adults who believe they may be autistic. This mixed-methods online survey examined adults' journeys from initial concern to receiving the diagnosis. Quantitative findings showed the diagnostic process to be highly heterogeneous. Qualitative analysis…
Descriptors: Adults, Clinical Diagnosis, Autism, Pervasive Developmental Disorders
Evans, Kiah; van der Meer, Larah; Eggleston, Matthew J. F.; Taylor, Lauren J.; Thabrew, Hiran; Waddington, Hannah; Whitehouse, Andrew J. O. – Journal of Autism and Developmental Disorders, 2022
The diagnostic experiences of autistic adults in New Zealand have not been investigated and little is known globally about autistic adults' satisfaction with the autism diagnostic process. This study describes the diagnostic experiences of 70 autistic adults living in New Zealand and explores how these experiences are related to satisfaction…
Descriptors: Foreign Countries, Autism, Adults, Clinical Diagnosis
Scattoni, Maria Luisa; Micai, Martina; Ciaramella, Antonio; Salvitti, Tommaso; Fulceri, Francesca; Fatta, Laura Maria; Poustka, Luise; Diehm, Robert; Iskrov, Georgi; Stefanov, Rumen; Guillon, Quentin; Rogé, Bernadette; Staines, Anthony; Sweeney, Mary Rose; Boilson, Andrew Martin; Leósdóttir, Thora; Saemundsen, Evald; Moilanen, Irma; Ebeling, Hanna; Yliherva, Anneli; Gissler, Mika; Parviainen, Tarja; Tani, Pekka; Kawa, Rafal; Vicente, Astrid; Rasga, Célia; Budisteanu, Magdalena; Dale, Ian; Povey, Carol; Flores, Noelia; Jenaro, Cristina; Monroy, Maria Luisa; Primo, Patricia García; Charman, Tony; Cramer, Susanne; Warberg, Christine Kloster; Canal-Bedia, Ricardo; Posada, Manuel; Schendel, Diana – Journal of Autism and Developmental Disorders, 2021
Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Adults
Howlin, Patricia – Journal of Autism and Developmental Disorders, 2021
Over the past four decades there have been significant advances in our understanding of autism, yet services for autistic adults continue to lag far behind those for children, and prospects for employment and independent living remain poor. Adult outcomes also vary widely and while cognitive and language abilities are important prognostic…
Descriptors: Adults, Autism, Pervasive Developmental Disorders, Clinical Diagnosis
Vuijk, Richard; Deen, Mathijs; Arntz, Arnoud; Geurts, Hilde M. – Journal of Autism and Developmental Disorders, 2022
For autism spectrum disorder (ASD) in adults there are several diagnostic instruments available with a need for consideration of the psychometric properties. This study aimed to conduct a first psychometric evaluation of a new diagnostic ASD instrument, the NIDA (Dutch Interview for Diagnostic assessment of ASD in adults) in 90 adult males without…
Descriptors: Foreign Countries, Clinical Diagnosis, Psychometrics, Autism
Koehler, Jana Christina; Georgescu, Alexandra Livia; Weiske, Johanna; Spangemacher, Moritz; Burghof, Lana; Falkai, Peter; Koutsouleris, Nikolaos; Tschacher, Wolfgang; Vogeley, Kai; Falter-Wagner, Christine M. – Journal of Autism and Developmental Disorders, 2022
Reliably diagnosing autism spectrum disorders (ASD) in adulthood poses a challenge to clinicians due to the absence of specific diagnostic markers. This study investigated the potential of interpersonal synchrony (IPS), which has been found to be reduced in ASD, to augment the diagnostic process. IPS was objectively assessed in videos…
Descriptors: Autism, Pervasive Developmental Disorders, Clinical Diagnosis, Reliability
McQuaid, Goldie A.; Lee, Nancy Raitano; Wallace, Gregory L. – Autism: The International Journal of Research and Practice, 2022
Camouflaging in autism spectrum disorder could be a factor in later diagnosis of individuals without co-occurring intellectual disability, particularly among those designated female sex at birth. Little research to date has examined how gender identity impacts camouflaging, however. Further, no study has compared groups that differ in diagnostic…
Descriptors: Autism, Pervasive Developmental Disorders, Gender Differences, Sexual Identity
Nyrenius, Johan; Eberhard, Jonas; Ghaziuddin, Mohammad; Gillberg, Christopher; Billstedt, Eva – Journal of Autism and Developmental Disorders, 2022
Relatively little has been published about the prevalence of autism in adults with psychiatric disorders. In this study, all new patients referred to an adult psychiatric outpatient clinic in Sweden between November 2019 and October 2020 (n = 562) were screened for autism spectrum disorders using the Ritvo Autism and Asperger Diagnostic Scale…
Descriptors: Adults, Autism, Pervasive Developmental Disorders, Mental Health
Nimmo-Smith, Victoria; Heuvelman, Hein; Dalman, Christina; Lundberg, Michael; Idring, Selma; Carpenter, Peter; Magnusson, Cecilia; Rai, Dheeraj – Journal of Autism and Developmental Disorders, 2020
Anxiety is common in children with ASD; however, the burden of specific anxiety disorders for adults with ASD is under-researched. Using the Stockholm Youth Cohort, we compared anxiety disorder diagnoses among autistic adults (n = 4049), with or without intellectual disability, and population controls (n = 217,645). We conducted additional sibling…
Descriptors: Anxiety Disorders, Adults, Autism, Pervasive Developmental Disorders
Crane, Laura; Hearst, Caroline; Ashworth, Maria; Davies, Jade; Hill, Elisabeth L. – Journal of Autism and Developmental Disorders, 2021
Sixteen adults (diagnosed or self-identified as autistic) participated in one of two iterations of a ten-week autistic-led programme, aimed at helping autistic adults learn more about autism within a peer group context. Motivations for taking part in the programme included a desire for: (1) exploration of autism; (2) empowerment; and (3) the…
Descriptors: Identification, Clinical Diagnosis, Autism, Adults
Santambrogio, Jacopo; Masi, Gabriele; Bertelli, Marco O. – Journal of Mental Health Research in Intellectual Disabilities, 2021
The purpose of this article is to discuss the Royal College of Psychiatrists' Report 230, "Attention deficit hyperactivity disorder (ADHD) in individuals with intellectual disability" which aims to reduce the frequent misdiagnosis of this condition in people with ID, as shown in the case vignette that begins our commentary. The College…
Descriptors: Attention Deficit Disorders, Adults, Intellectual Disability, Comorbidity
Kildahl, Arvid Nikolai; Helverschou, Sissel Berge; Bakken, Trine Lise; Oddli, Hanne Weie – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Individuals with autism spectrum disorder (ASD) and intellectual disability (ID) are at increased risk of potentially traumatic events and may be at increased risk of post-traumatic stress disorder (PTSD). However, knowledge regarding identification of PTSD in this population is limited. The aim of this study was to investigate…
Descriptors: Adults, Autism, Pervasive Developmental Disorders, Intellectual Disability
Russ, Victoria; Kovshoff, Hanna; Brown, Tony; Abbott, Patricia; Hadwin, Julie A. – Journal of Autism and Developmental Disorders, 2020
This study explored the social-cognitive profile of 173 adults referred for an autism assessment. We considered key dimensional traits (autism, empathy and systemising) to understand social cognition in adults diagnosed with an autism spectrum condition compared with those who were referred for, but did not receive a diagnosis. There were no…
Descriptors: Adults, Autism, Pervasive Developmental Disorders, Symptoms (Individual Disorders)
Carrington, Sarah J.; Barrett, Sarah L.; Sivagamasundari, Umapathy; Fretwell, Christine; Noens, Ilse; Maljaars, Jarymke; Leekam, Susan R. – Journal of Autism and Developmental Disorders, 2019
The rate of diagnosis of autism in adults has increased over recent years; however, the profile of behaviours in these individuals is less understood than the profile seen in those diagnosed in childhood. Better understanding of this profile will be essential to identify and remove potential barriers to diagnosis. Using an abbreviated form of the…
Descriptors: Adults, Autism, Pervasive Developmental Disorders, Diagnostic Tests
Jia, Ronnie; Steelman, Zachary R.; Jia, Heather H. – Journal of Autism and Developmental Disorders, 2019
This study assesses the psychometric properties of three self-report measures of autistic-like tendencies in the general adult population: "autistic spectrum quotient (AQ)", "adult repetitive behaviours questionnaire-2 (RBQ-2A)", and "systemizing quotient (SQ)". Three rounds of development and testing using different…
Descriptors: Psychometrics, Autism, Symptoms (Individual Disorders), Pervasive Developmental Disorders
