Using principles of community-based participatory research we developed a new theory-based measure of health-related quality of life (HRQOL) for individuals with intellectual disability (ID). We recruited adults with ID (n = 129) to take part in interviews and review successive versions of HRQOL items. Critical input about content and…

Research has shown that autistic adults have poor health outcomes. We conducted a systematic review to identify existing interventions to address health outcomes for autistic adults and to determine whether these interventions address the priorities of the autistic community. We searched PubMed for articles that included an intervention, a primary…

This study illuminates how adults with intellectual disabilities understand and describe their everyday life and its shortcomings when it comes to equal rights in the context of Norwegian community living. An inclusive research design, including nine persons with mild intellectual disability, two university researchers and two intellectual…

The study focused on perspectives of people with intellectual disability (ID) regarding their experience of being involved in an intimate relationship with a steady partner and on the discrepancies between their reported experiences and the prevailing opinions on this issue as expressed in the professional literature. In light of the importance of…

Background: Down syndrome (DS) is the most common genetic cause of intellectual disability. Prior research has primarily focused on associated medical problems and skill deficits. This study takes a novel positive psychology approach by examining critical individual characteristics and environmental factors that facilitate exceptional quality of…

Objective: Health promotion in sports clubs is receiving increased attention, but its benefits have not been widely evaluated for two reasons: (1) the difficulty in measuring ecological approach outcomes and (2) the existing literature having focused more on coaches' efficiency rather than on health promotion. This article analyses the…

Being able to play the guitar and sing one's favorite songs is often an unrealized adolescent dream. Guitar Express is a group music making approach that aims to enable people to realize this dream and develop an identity of amateur musician regardless of age. This is achieved through the use of an alternate tuning of the guitar and a variety of…

Background: This study investigated perceived quality of life (QoL) of community-dwelling middle-aged adults (30-50 years) with an intellectual disability and/or developmental disability living in rural or urban areas in New South Wales and Queensland, Australia. The specific aim of the current paper was to provide a descriptive evidence base of…

The aim of this study was to examine the mediating effect of formal and informal social support on the relationship of caregiver burden and quality of life (QOL), using a sample of 320 parents (aged 50 or older) of adult children with autism spectrum disorder (ASD). Multiple linear regression and mediation analyses indicated that caregiver burden…

Personal decision-making is a core element of self-determination and quality of life for individuals with intellectual and developmental disabilities (IDD), however, they have traditionally been appointed a guardian to make decisions for them. Guardians are encouraged to involve their wards in decisions, but this comes with challenges as many are…

This preliminary qualitative description study explored knowledge from urban Ghanaians about the nature and impact of their self-reported voice problem. Ten Ghanaians were screened for a self-reported voice disorder using the "Voice Handicap Index--10" (VHI-10), and they also completed a structured interview with a speech-language…

Health disparities are documented between adults with intellectual and developmental disabilities (IDD) and neurotypical peers. As progress has been slow in improving health outcomes in people with IDD, the aim of this retrospective study was to compare effectiveness of a new Cross-Systems Care Integration (CSCI) model of care coordination to…

The main goal of this research is to evaluate the relationship between the built environment and public health of citizens in four different buffers of Sanandaj, Kurdistan province, Iran. There is a growing body of evidence that links the neighborhood design to public health and argues that the built environment impacts on the public health of…

Relatively little is yet known about employment readiness and elements that promote access to, and the retention of, employment for adults with autism spectrum disorder (ASD). This paper posits elements within the ecosystem of employment and ASD. The ecosystem approach locates employment among persons with ASD as inextricably linked with broader…

Background: Respite care is an essential support for people with intellectual disabilities and their families; however, there is limited evidence examining different models of respite care. The present research examined quality of life among adults with intellectual disabilities using three different models of respite services in Ireland. Method:…