Background: Persons with profound and multiple learning disabilities (PMLD) risk exclusion, both in research and as members of society. Because of their embodied communication, they face the challenges in being understood. Oftentimes, others speak on their behalf making inferences on what their perspective might be. Methods: Empathy is suggested…

The purpose of this study was to investigate critical independent living skills for adults with intellectual and developmental disabilities who live in the community and common reasons individuals lose their residential placement. Participants included residential specialists from 26 states who worked at small group homes and supported apartments.…

Background: People with learning disabilities have the right to choose where they live. However, evidence suggests people's choices are limited due to a shortage of housing. Methods: 200 Lives was a mixed methods research project, which evaluated supported living and residential care for people with learning disabilities in England; 107 people…

Quality of life (QoL) is a key outcome used to monitor service planning and delivery for individuals with Intellectual and Developmental Disabilities (IDD). Unfortunately, many current instruments used to measure QoL have psychometric and content limitations and none are suitable for use with individuals with the lowest levels of functioning and…

Background: This research aims to study the role of people with intellectual disability in taking decisions regarding the support provided under the supported living model. Method: Interviews were conducted with 13 people with intellectual disability, and six support professionals with experience working in organisations offering personalised…

Introduction: The COVID-19 pandemic has impacted people around the world, partly due to the restrictions it imposed on social interactions. This impact was felt to a great extent by persons with autism spectrum disorder (ASD) and an intellectual disability (ID) who rely on 24-hour support to live in the community, and by their mothers, who remain…

Adults on the autism spectrum and those with intellectual disability or mental health conditions may be at increased risk of contracting COVID-19 or experiencing more severe illness if infected. We identified risk factors for COVID-19 among adults enrolled in Medicaid with an autism spectrum disorder diagnosis, intellectual disability, or mental…

Much research has explored transitions into adulthood for children living in out-of-home care. However, most of these studies are concentrated in Western countries, leaving a gap of information from the Global South. This paper discusses findings from a small-scale qualitative study conducted in Harare, Zimbabwe. Semi-structured interviews with (n…

Background: While psychologists working with people with an intellectual disability routinely work with care staff in residential care homes there is a lack of research investigating how psychologists can effectively assess, collaborate, and engage with staff groups. Aims: This research seeks to explore psychologists' experiences of working with…

Background: The aim of this study was to investigate the prevalence of and the factors associated with psychiatric symptoms (PS) and challenging behaviour (CB) in adults with intellectual disabilities, and the utilization of psychiatric services in Turkey. Method: Psychiatric Assessment Schedule for Adults with Developmental Disorders…

Background: Ireland has a growing population of adult persons living with family carers, thereby increasing the demand for residential places. Simultaneously, government policy aimed to reprovision residents living in congregated settings but at a time when funding was curtailed due to the economic crisis. This study examines the movements of…

Objectives: The aim of this study was to explore the prevalence and nature of end-of-life decisions for people with disabilities in Swiss residential homes and determine their involvement making these decisions. Methods: All of the residential homes for adults with disabilities in Switzerland (N = 437) were invited to participate in a…

Background: Respite care is an essential support for people with intellectual disabilities and their families; however, there is limited evidence examining different models of respite care. The present research examined quality of life among adults with intellectual disabilities using three different models of respite services in Ireland. Method:…

Background: People with intellectual disability and chronic and complex support needs often require unique models of care that are intensive and expensive. How these supports can be continued within a rapidly changing policy and funding context in Australia, has not been fully determined. Method: This descriptive study utilised a retrospective…

Young people's experiences of, and (dis)engagement with, physical education has received considerable attention in recent years. Yet one 'group', "care-experienced young people", remain 'hidden' within the prevailing literature. In light of their apparent invisibility within research, this novel, exploratory study seeks to gain some…