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Eilidh Cage; Monique Botha; Lynsey McDevitt; Karis N. King; Liz Biscoe; Kirsty Tucker; Amy Pearson – Autism: The International Journal of Research and Practice, 2024
Autistic people diagnosed in adulthood often report that the experience can be life-changing, but there are issues with the diagnostic pathway. Few studies consider the views of people "currently" seeking diagnosis or contextualise the experience of diagnosis around developing an autistic identity. In this qualitative participatory…
Descriptors: Autism Spectrum Disorders, Photography, Adults, Coping
Dara E. Babinski; Erin J. Libsack – Journal of Attention Disorders, 2025
Objective: The goal of this study was to examine the experiences of women diagnosed with ADHD in adulthood. Methods: Benefits and costs associated with obtaining the diagnosis were examined in two focus groups conducted virtually. Factors hindering and facilitating the identification, assessment, and subsequent treatment of ADHD were also…
Descriptors: Adults, Clinical Diagnosis, Attention Deficit Hyperactivity Disorder, Females
Slavny-Cross, Rachel; Allison, Carrie; Griffiths, Sarah; Baron-Cohen, Simon – Autism: The International Journal of Research and Practice, 2023
The UK government identified 'improving support within the criminal justice systems' as a priority for autistic people. There is a lack of quantitative research to enable policymakers to make evidence-based decisions on how to improve access to justice for autistic people. This study used a case-comparison design to compare the experiences of 145…
Descriptors: Autism Spectrum Disorders, Adults, Crime, Disproportionate Representation
Caron, Vicky; Jeanneret, Nuria; Giroux, Mathieu; Guerrero, Lucila; Ouimet, Mélanie; Forgeot d'Arc, Baudouin; Soulières, Isabelle; Courcy, Isabelle – Autism: The International Journal of Research and Practice, 2022
Quality of life is important for the development and evaluation of interventions for autistic people. It is a multidimensional concept, anchored in a sociocultural context and based on a person's subjective assessment of their life. The aim of this study is to examine whether the determinants of perceived quality of life vary by country (or…
Descriptors: Autism, Pervasive Developmental Disorders, Quality of Life, Clinical Diagnosis
Davys, Deborah; Mitchell, Duncan; Martin, Rachel – British Journal of Learning Disabilities, 2017
Background: There is little research that specifically relates to fathers of adults with a learning disability despite the social expectation that fathers will provide a supportive role over the lifespan. Methods: Semi-structured interviews were carried out with seven fathers of adults with a learning disability to explore their roles, needs and…
Descriptors: Fathers, Adults, Learning Disabilities, Parent Role
Jensen, Christina Mohr; Martens, Caroline Skat; Nikolajsen, Nanna Dagmar; Skytt Gregersen, Trine; Heckmann Marx, Nanna; Goldberg Frederiksen, Mette; Hansen, Martine Stene – Autism: The International Journal of Research and Practice, 2016
Few studies investigate what members of the general population know about individuals with autism. Only one study has previously investigated how beliefs about autism differ from those about other psychiatric disorders. This study surveyed a convenience sample of the general adult population, within the Northern Region of Denmark, about their…
Descriptors: Autism, Pervasive Developmental Disorders, Adults, Schizophrenia
Johnson, Jeffrey G.; First, Michael B.; Block, Susan; Vanderwerker, Lauren C.; Zivin, Kara; Zhang, Baohui; Prigerson, Holly G. – Death Studies, 2009
Severe grief symptoms, treatment receptivity, attitudes about grief, and stigmatization concerns were assessed in a community-based sample of 135 widowed participants in the Yale Bereavement Study. There was a statistically significant association between the severity of grief symptoms and reported negative reactions from friends and family…
Descriptors: Health Services, Grief, Mental Health Programs, Social Bias

Chaplin, John E.; And Others – International Journal of Rehabilitation Research, 1993
Analysis of completed questionnaires from 192 individuals with newly diagnosed epilepsy found that half the sample had experienced only 3 seizures or less since onset, but 91% reported at least some adjustment problems, most frequently concerning fear of seizures, fear of stigma in employment, or problems with accepting the diagnosis. (DB)
Descriptors: Adults, Adventitious Impairments, Attitudes, Clinical Diagnosis
Jopp, David A.; Keys, Christopher B. – American Journal on Mental Retardation, 2001
This article discusses diagnostic overshadowing, a robust bias that negatively affects the accuracy of clinicians' judgments about concomitant mental illness in persons with mental retardation and mental illness. Reviewing 12 studies, it examined moderators of diagnostic overshadowing and found clinician's cognitive complexity negatively affects…
Descriptors: Adults, Children, Clinical Diagnosis, Disability Identification
Guyer, Barbara P. – 1997
This book tells the stories of eight people with above average to highly gifted levels of intellect, who also have significant, previously unrecognized and undiagnosed, learning disabilities. Their discovery of their true abilities and gifts after years of humiliation within the educational system and the trials of daily life is detailed. The…
Descriptors: Adolescents, Adults, Attention Deficit Disorders, Attitudes toward Disabilities