Publication Date
| In 2025 | 0 |
| Since 2024 | 11 |
| Since 2021 (last 5 years) | 36 |
| Since 2016 (last 10 years) | 69 |
| Since 2006 (last 20 years) | 109 |
Descriptor
| Adults | 117 |
| Clinical Diagnosis | 117 |
| Foreign Countries | 117 |
| Autism | 47 |
| Pervasive Developmental… | 39 |
| Symptoms (Individual… | 35 |
| Autism Spectrum Disorders | 23 |
| Incidence | 23 |
| Children | 21 |
| Gender Differences | 20 |
| Mental Disorders | 19 |
| More ▼ | |
Source
Author
Publication Type
| Journal Articles | 110 |
| Reports - Research | 98 |
| Reports - Descriptive | 9 |
| Reports - Evaluative | 8 |
| Information Analyses | 4 |
| Reference Materials -… | 4 |
| Tests/Questionnaires | 3 |
| Numerical/Quantitative Data | 1 |
| Speeches/Meeting Papers | 1 |
Education Level
| Adult Education | 2 |
| Higher Education | 2 |
| Postsecondary Education | 2 |
Audience
Location
| United Kingdom | 23 |
| Netherlands | 14 |
| Australia | 13 |
| Sweden | 10 |
| Germany | 8 |
| Norway | 6 |
| United States | 5 |
| Canada | 4 |
| Japan | 4 |
| United Kingdom (London) | 4 |
| France | 3 |
| More ▼ | |
Laws, Policies, & Programs
Assessments and Surveys
What Works Clearinghouse Rating
Peer reviewed
Direct linkRenate Bosman; Jochem Thijs – Journal of Autism and Developmental Disorders, 2024
This research examined the preference for identity-first language (IFL) versus person-first language (PFL) among 215 respondents (M[subscript age] = 30.24 years, SD = 9.92) from the Dutch autism community. We found that a stronger identification with the autism community and a later age of diagnosis predicted a stronger IFL preference and a weaker…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Language Usage, Adults
Huang, Yunhe; Arnold, Samuel R. C.; Foley, Kitty-Rose; Trollor, Julian N. – Journal of Autism and Developmental Disorders, 2022
Pathways to diagnosis in adulthood are poorly understood. Even less is known about undiagnosed adults who believe they may be autistic. This mixed-methods online survey examined adults' journeys from initial concern to receiving the diagnosis. Quantitative findings showed the diagnostic process to be highly heterogeneous. Qualitative analysis…
Descriptors: Adults, Clinical Diagnosis, Autism, Pervasive Developmental Disorders
Evans, Kiah; van der Meer, Larah; Eggleston, Matthew J. F.; Taylor, Lauren J.; Thabrew, Hiran; Waddington, Hannah; Whitehouse, Andrew J. O. – Journal of Autism and Developmental Disorders, 2022
The diagnostic experiences of autistic adults in New Zealand have not been investigated and little is known globally about autistic adults' satisfaction with the autism diagnostic process. This study describes the diagnostic experiences of 70 autistic adults living in New Zealand and explores how these experiences are related to satisfaction…
Descriptors: Foreign Countries, Autism, Adults, Clinical Diagnosis
Underwood, Jack F. G.; DelPozo-Banos, Marcos; Frizzati, Aura; John, Ann; Hall, Jeremy – Autism: The International Journal of Research and Practice, 2022
Estimates place the prevalence of autism spectrum disorders (autism) at around 1% in the population. New services for adult diagnosis have been set up in Wales, UK, at a time of rising awareness of the spectrum of autism experiences; however, no studies have examined adult autism prevalence in Wales. In this study, we used an anonymised e-cohort…
Descriptors: Autism Spectrum Disorders, Clinical Diagnosis, Foreign Countries, Adults
Scheirs, J. G. M.; Muller, A.; Manders, N. C. P.; van der Zanden, C. D. – Journal of Mental Health Research in Intellectual Disabilities, 2023
Introduction: Estimates of the prevalence of depression in people with intellectual disability range from almost nonexistent to 39%. We analyzed the outcomes of three screening instruments to find out more about the prevalence in people with mild or borderline disability. Methods: 102 Dutch individuals residing in institutions or living…
Descriptors: Depression (Psychology), Incidence, Clinical Diagnosis, Mild Intellectual Disability
Susanna Crowson; Daniel Poole; Kelly Scargill; Megan Freeth – Autism: The International Journal of Research and Practice, 2024
Post-diagnostic support for autistic adults in the United Kingdom is geographically inequitable and, in general, considered inadequate. This results in autistic adults facing unnecessary challenges and wide-ranging poor outcomes. A modified Delphi study sought to establish autistic adults' priorities for optimal provision of post-diagnostic…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Adults, Access to Health Care
Raven Bureau; Céline Clément – Autism: The International Journal of Research and Practice, 2024
Research on how adults react to receiving an autism diagnosis is focused on the United States or the United Kingdom context even though cultural differences might have an impact on these experiences. Few interventions for autistic adults exist, and when they do, they are often described as inappropriate. Our study aimed to explore the experiences…
Descriptors: Foreign Countries, Adults, Autism Spectrum Disorders, Clinical Diagnosis
Florence Y. N. Leung; Punit Shah; David Mason; Lucy A. Livingston – Autism: The International Journal of Research and Practice, 2024
It was recently reported that learning one is autistic earlier in life is associated with greater quality of life and well-being in university students. In a pre-registered extension of this work, we addressed several limitations of this study by: (1) recruiting a larger sample of more diverse ages and education levels; (2) distinguishing between…
Descriptors: Autism Spectrum Disorders, Adults, Identification, Clinical Diagnosis
Eilidh Cage; Monique Botha; Lynsey McDevitt; Karis N. King; Liz Biscoe; Kirsty Tucker; Amy Pearson – Autism: The International Journal of Research and Practice, 2024
Autistic people diagnosed in adulthood often report that the experience can be life-changing, but there are issues with the diagnostic pathway. Few studies consider the views of people "currently" seeking diagnosis or contextualise the experience of diagnosis around developing an autistic identity. In this qualitative participatory…
Descriptors: Autism Spectrum Disorders, Photography, Adults, Coping
Lilley, Rozanna; Lawson, Wenn; Hall, Gabrielle; Mahony, Joanne; Clapham, Hayley; Heyworth, Melanie; Arnold, Samuel; Trollor, Julian; Yudell, Michael; Pellicano, Elizabeth – Journal of Autism and Developmental Disorders, 2023
In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic…
Descriptors: Foreign Countries, Oral History, Autism Spectrum Disorders, Adults
Scattoni, Maria Luisa; Micai, Martina; Ciaramella, Antonio; Salvitti, Tommaso; Fulceri, Francesca; Fatta, Laura Maria; Poustka, Luise; Diehm, Robert; Iskrov, Georgi; Stefanov, Rumen; Guillon, Quentin; Rogé, Bernadette; Staines, Anthony; Sweeney, Mary Rose; Boilson, Andrew Martin; Leósdóttir, Thora; Saemundsen, Evald; Moilanen, Irma; Ebeling, Hanna; Yliherva, Anneli; Gissler, Mika; Parviainen, Tarja; Tani, Pekka; Kawa, Rafal; Vicente, Astrid; Rasga, Célia; Budisteanu, Magdalena; Dale, Ian; Povey, Carol; Flores, Noelia; Jenaro, Cristina; Monroy, Maria Luisa; Primo, Patricia García; Charman, Tony; Cramer, Susanne; Warberg, Christine Kloster; Canal-Bedia, Ricardo; Posada, Manuel; Schendel, Diana – Journal of Autism and Developmental Disorders, 2021
Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Adults
Wigham, Sarah; Ingham, Barry; Le Couteur, Ann; Wilson, Colin; Ensum, Ian; Parr, Jeremy R. – Autism: The International Journal of Research and Practice, 2023
Opportunities for adults to access support following a clinical diagnosis of autism are limited. This study investigated perspectives of autistic adults, relatives and clinicians regarding characteristics of optimal adult autism post-diagnosis support and services. In Stage 1, key stakeholders were surveyed about recent experiences of UK adult…
Descriptors: Autism Spectrum Disorders, Adults, Clinical Diagnosis, Foreign Countries
Golan, Ofer; Terner, Michael; Israel-Yaacov, Sandra; Allison, Carrie; Baron-Cohen, Simon – Autism: The International Journal of Research and Practice, 2023
The Autism-Spectrum Quotient is a self-report scale, used to assess autistic traits. It was tested cross-culturally, and a short version was created to clinically refer adults for an autism assessment. This study aimed to examine the properties of the Hebrew version of the Autism-Spectrum Quotient and to create a short version suitable for…
Descriptors: Autism Spectrum Disorders, Symptoms (Individual Disorders), Hebrew, Psychometrics
Smith, Olivia; Jones, Sandra C. – Journal of Autism and Developmental Disorders, 2020
Asperger's Syndrome was introduced as a separate diagnostic category in the DSM-4 (1994). Its subsequent absorption into autism spectrum disorder in the DSM-5 (2013) led to vigorous debate and concerns about the loss of the unique Asperger's identity. Existing research has identified that adults previously diagnosed with Asperger's have expressed…
Descriptors: Asperger Syndrome, Disability Identification, Clinical Diagnosis, Adults
Vuijk, Richard; Deen, Mathijs; Arntz, Arnoud; Geurts, Hilde M. – Journal of Autism and Developmental Disorders, 2022
For autism spectrum disorder (ASD) in adults there are several diagnostic instruments available with a need for consideration of the psychometric properties. This study aimed to conduct a first psychometric evaluation of a new diagnostic ASD instrument, the NIDA (Dutch Interview for Diagnostic assessment of ASD in adults) in 90 adult males without…
Descriptors: Foreign Countries, Clinical Diagnosis, Psychometrics, Autism
