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Direct linkFong, Vanessa C.; Shim, Jennifer; Yoon, Andy; Lee, Bo Sang; Iarocci, Grace – Autism: The International Journal of Research and Practice, 2023
The experiences of coping in parents of autistic children have been extensively studied in the literature. While this research has identified both effective and ineffective coping strategies used by caregivers, no studies to date have examined how coping strategies used by parents might be linked to family quality of life outcomes. Furthermore,…
Descriptors: Immigrants, Parent Attitudes, Coping, Quality of Life
Yokell, Carole – ProQuest LLC, 2023
The problem addressed in the research was that many individuals were not diagnosed with attention deficit hyperactivity disorder (ADHD) until they were adults. The purpose of the study was to examine the experiences and beliefs of participants regarding the management of ADHD and the impact that experiences may or may not have regarding the…
Descriptors: Adults, Attention Deficit Hyperactivity Disorder, Educational Diagnosis, Experience
Colic, Marija; Dababnah, Sarah; Garbarino, Nicole; Betz, Gail – International Journal of Developmental Disabilities, 2022
Parents of children with autism spectrum disorder (ASD) are often at greater risk of experiencing stress and lower quality of life, in comparison to parents of typically developing (TD) children and other developmental disabilities. Despite vast literature on parental experiences in Western countries, little is known about this topic in Eastern…
Descriptors: Autism, Pervasive Developmental Disorders, Child Rearing, Coping
Bowring, Darren L.; Totsika, Vasiliki; Hastings, Richard P.; Toogood, Sandy – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Previous evaluations of community PBS teams have not investigated whether behaviour change is both statistically reliable and clinically significant. Few previous studies have reported quality of life (QoL) and social validity outcomes. Method: The present authors collected data on 85 people referred to a specialist PBS team. The…
Descriptors: Developmental Disabilities, Behavior Change, Behavior Problems, Positive Behavior Supports
Pfeiffer, Beth; Piller, Aimee; Giazzoni-Fialko, Tina; Chainani, Anjali – Journal of Intellectual & Developmental Disability, 2017
Background: Autism spectrum disorder (ASD) is a developmental disorder that continues across the lifespan, but little research exists to examine interventions from both child and adult perspectives. The researchers in this study considered the perspectives of individuals with ASD and caregivers of children with ASD to determine interventions and…
Descriptors: Autism, Pervasive Developmental Disorders, Intervention, Parents
Moss, Philippa; Mandy, William; Howlin, Patricia – Journal of Autism and Developmental Disorders, 2017
The WHO Quality of Life-Brief questionnaire was used to assess quality of life (QoL) among 52 adults with autism (mean age 49 years) followed-up since childhood. Overall, assessments of QOL were more positive than measures of objective social outcome (jobs, independence, relationships etc.) but correlations between caregiver and self-reports were…
Descriptors: Quality of Life, Autism, Pervasive Developmental Disorders, Questionnaires
Download full textBess, Fred H.; Hornsby, Benjamin W.Y. – Grantee Submission, 2014
Anecdotal reports of fatigue after sustained speech-processing demands are common among adults with hearing loss; however, systematic research examining hearing loss-related fatigue is limited, particularly with regard to fatigue among children with hearing loss (CHL). Many audiologists, educators, and parents have long suspected that CHL…
Descriptors: Listening, Fatigue (Biology), Hearing Impairments, Children
Ainuki, Tomomi; Akamatsu, Rie; Hayashi, Fumi; Takemi, Yukari – Journal of Nutrition Education and Behavior, 2013
Objective: This study examined whether the experience of enjoyable mealtimes at home during childhood was related to eating behaviors and subjective diet-related quality of life in adulthood. Methods: The study used data (n = 2,936) obtained from a research program about "Shokuiku" (food and nutrition education) conducted by the Cabinet…
Descriptors: Children, Quality of Life, Dietetics, Eating Habits
Pagliano, Paul – Routledge, Taylor & Francis Group, 2012
Do you support a child or adult with sensory perceptual issues or cognitive impairment? For people with challenging sensory and cognitive conditions, everyday life can become so unpredictable and chaotic that over time, lack of engagement can often lead to a state of learned helplessness. In this insightful text, Paul Pagliano shows how "learned…
Descriptors: Stimulation, Intervention, Helplessness, Learning Disabilities
Caples, Maria; Sweeney, John – British Journal of Learning Disabilities, 2011
Two-thirds of the people registered on the Irish National Intellectual Disability Database (NIDD) reside at home with family members frequently supporting them (Kelly et al., "National Intellectual Disability Database Committee Annual Report 2006," Health Research, 2007). Use of respite care services by parents with a child/adult with an…
Descriptors: Health Services, Mental Retardation, Quality of Life, Parents
Silverman, Wayne – Exceptional Parent, 2009
People commonly expect to stay active well into their 80s, and while it may be hard to believe, people over 100 make up the fastest growing segment of the population. Thankfully, these impressive increases in longevity have also benefited people with developmental disabilities (DD), most of whom can now expect to live just as long as their…
Descriptors: Quality of Life, Developmental Disabilities, Down Syndrome, Parents
Krebs, Hermano I.; Ladenheim, Barbara; Hippolyte, Christopher; Monterroso, Linda; Mast, Joelle – Developmental Medicine & Child Neurology, 2009
Our goal was to examine the feasibility of applying therapeutic robotics to children and adults with severe to moderate impairment due to cerebral palsy (CP). Pilot results demonstrated significant gains for both groups. These results suggest that robot-mediated therapy may be an effective tool to ameliorate the debilitating effects of CP and…
Descriptors: Cerebral Palsy, Robotics, Developmental Disabilities, Therapy
Sawin, Kathleen J.; Bellin, Melissa H. – Developmental Disabilities Research Reviews, 2010
Quality of life (QOL) is an important concept for individuals with chronic health conditions. Measuring and supporting QOL in children, adolescents, and adults with spina bifida (SB) may be especially unique given the broad range of complex health and rehabilitative challenges they encounter. This article provides a research update on (a)…
Descriptors: Disabilities, Quality of Life, Congenital Impairments, Literature Reviews
Ratcliffe, Katherine T.; Sanekane, Cindy – Australian Journal of Outdoor Education, 2009
Equine-assisted therapies are interventions that use the unique qualities of a horse to assist persons with disabilities to improve their gross motor, language, social, and self-help skills. Programs offering these services are varied and operate on all major continents across the world. The effectiveness of equine-assisted therapies is generally…
Descriptors: Horses, Therapy, Disabilities, Skill Development
Dunlap, Glen; Carr, Edward G.; Horner, Robert H.; Koegel, Robert L.; Sailor, Wayne; Clarke, Shelley; Koegel, Lynn Kern; Albin, Richard W.; Vaughn, Bobbie J.; McLaughlin, Darlene Magito; James, Kim Mullen; Todd, Anne W.; Newton, J. Stephen; Lucyshyn, Joseph; Griggs, Peter; Bohanon, Hank; Choi, Jeong Hoon; Vismara, Laurie; Minjarez, Mendy Boettcher; Buschbacher, Pamelazita; Fox, Lise – Behavioral Disorders, 2010
A major goal of positive behavior support (PBS) is to produce broad-based, long-term improvements in adaptive behavior; however, the empirical base, at present, is mainly composed of relatively short-term studies carried out in circumscribed contexts. Therefore, a need exists for reliable data that can inform the field regarding the comprehensive…
Descriptors: Intervention, Quality of Life, Behavior Modification, Rating Scales
