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Renate Bosman; Jochem Thijs – Journal of Autism and Developmental Disorders, 2024
This research examined the preference for identity-first language (IFL) versus person-first language (PFL) among 215 respondents (M[subscript age] = 30.24 years, SD = 9.92) from the Dutch autism community. We found that a stronger identification with the autism community and a later age of diagnosis predicted a stronger IFL preference and a weaker…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Language Usage, Adults
Gayle L. Overton; Ferran Marsà-Sambola; Rachael Martin; Penny Cavenagh – Review Journal of Autism and Developmental Disorders, 2024
Adults are increasingly self-identifying as autistic, and reporting problems being referred for an autism diagnostic assessment. This scoping review aims to ascertain: (1) what research has been conducted on the self-identification process of autism in adults, who do and do not have a formal diagnosis of autism, and (2) which aspects of the…
Descriptors: Autism Spectrum Disorders, Adults, Identification, Clinical Diagnosis
Hannah Gellini; Magda Marczak – Review Journal of Autism and Developmental Disorders, 2024
A broadening of diagnostic criteria and increased awareness of autism has led to a large number of individuals whose difficulties remained undetected until adulthood. This systematic review aimed to synthesise empirical evidence of the experience of individuals who received their diagnosis of autism in adulthood. Eight studies met the inclusion…
Descriptors: Clinical Diagnosis, Autism Spectrum Disorders, Adults, Meta Analysis
Susanna Crowson; Daniel Poole; Kelly Scargill; Megan Freeth – Autism: The International Journal of Research and Practice, 2024
Post-diagnostic support for autistic adults in the United Kingdom is geographically inequitable and, in general, considered inadequate. This results in autistic adults facing unnecessary challenges and wide-ranging poor outcomes. A modified Delphi study sought to establish autistic adults' priorities for optimal provision of post-diagnostic…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Adults, Access to Health Care
Raven Bureau; Céline Clément – Autism: The International Journal of Research and Practice, 2024
Research on how adults react to receiving an autism diagnosis is focused on the United States or the United Kingdom context even though cultural differences might have an impact on these experiences. Few interventions for autistic adults exist, and when they do, they are often described as inappropriate. Our study aimed to explore the experiences…
Descriptors: Foreign Countries, Adults, Autism Spectrum Disorders, Clinical Diagnosis
Rachel S. Johnson; Hillary E. Swann-Thomsen; Naida Dillion; Elyse A. C. Palumbo; Kristi Pardue; Hilary Flint; Kurt J. Nilsson – Journal of Attention Disorders, 2025
Background: Concussions are a prevalent health concern, affecting millions of individuals in the United States yearly. Concussion symptomology overlaps with other conditions making diagnosis and management particularly challenging, particularly among individuals with ADHD. ADHD is a neurodevelopmental disorder that affects a significant portion of…
Descriptors: Adults, Attention Deficit Hyperactivity Disorder, Head Injuries, Symptoms (Individual Disorders)
Florence Y. N. Leung; Punit Shah; David Mason; Lucy A. Livingston – Autism: The International Journal of Research and Practice, 2024
It was recently reported that learning one is autistic earlier in life is associated with greater quality of life and well-being in university students. In a pre-registered extension of this work, we addressed several limitations of this study by: (1) recruiting a larger sample of more diverse ages and education levels; (2) distinguishing between…
Descriptors: Autism Spectrum Disorders, Adults, Identification, Clinical Diagnosis
Alexandra Sturm; Sijia Huang; Vanessa Bal; Ben Schwartzman – Autism: The International Journal of Research and Practice, 2024
Several validated adult autism symptom screening tools exist; however, there are concerns about the validity of instruments in adults who self-identify and those who have an autism diagnosis. This study evaluated the psychometric properties of the RAADS-R and RAADS-14 across gender, autism diagnosis and autistic identity, and age among a sample of…
Descriptors: Psychometrics, Autism Spectrum Disorders, Adults, Screening Tests
Ingrid Kiehl; Ruby Pease; Corinna Hackmann – Autism: The International Journal of Research and Practice, 2024
There is a dearth of research into the experience of adult diagnosis of autism spectrum disorder, and targeted research is needed to understand the needs of these adults. The aim of this coproduced review was to assess existing qualitative data on the lived experience of receiving an autism spectrum disorder diagnosis, identify recurring themes,…
Descriptors: Adults, Autism Spectrum Disorders, Clinical Diagnosis, Attitudes
Gabrielle Nwaordu; Rebecca A. Charlton – Journal of Autism and Developmental Disorders, 2024
Purpose: Restricted and repetitive behaviours are a core feature of autism diagnoses but have not been widely studied in adulthood. This study examined the rates of and associations between repetitive behaviours and sensory sensitivity in autistic and non-autistic adults; and whether repetitive behaviours described as "stimming" impacted…
Descriptors: Sensory Integration, Symptoms (Individual Disorders), Autism Spectrum Disorders, Self Efficacy
Eilidh Cage; Monique Botha; Lynsey McDevitt; Karis N. King; Liz Biscoe; Kirsty Tucker; Amy Pearson – Autism: The International Journal of Research and Practice, 2024
Autistic people diagnosed in adulthood often report that the experience can be life-changing, but there are issues with the diagnostic pathway. Few studies consider the views of people "currently" seeking diagnosis or contextualise the experience of diagnosis around developing an autistic identity. In this qualitative participatory…
Descriptors: Autism Spectrum Disorders, Photography, Adults, Coping
Impairment Assessment in Adult ADHD and Related Disorders: Current Opinions from Clinic and Research
Anselm B. M. Fuermaier; Caroline Gontijo-Santos Lima; Oliver Tucha – Journal of Attention Disorders, 2024
Objectives: Assessing functional impairment is one of the essential components in the clinical evaluation of ADHD in adulthood, serving both diagnostic and outcome evaluation purposes. However, clinicians and researchers may face challenges in selecting suitable instruments due to variations in accessibility and quality of instruments. Methods: We…
Descriptors: Attention Deficit Hyperactivity Disorder, Standards, Clinical Diagnosis, Barriers
Jessica E. Rast; Sherira J. Fernandes; Whitney Schott; Lindsay L. Shea – Journal of Autism and Developmental Disorders, 2024
This study examined hospitalizations in a large, all-payer, nationally representative sample of inpatient hospitalizations in the US and identified differences in rates of hospitalization for conditions by race and ethnicity in autistic adults. Conditions examined included mood disorders, epilepsy, schizophrenia, and ambulatory care sensitive…
Descriptors: Autism Spectrum Disorders, Adults, Patients, Hospitals
James Sinclair; Jill A. Hollway; Christopher Sanford; Renee Cameto; Betsy Benson; L. Eugene Arnold; John R. Seeley – Journal of Mental Health Research in Intellectual Disabilities, 2024
Introduction: Young people with intellectual disabilities (ID) are at an increased risk for experiencing mental health issues compared to their peers without disabilities. Further, there are limited resources available to help accurately assess mental health disorders and that are accessible for adolescents with ID. Method: This paper describes…
Descriptors: Adolescents, Adults, Intellectual Disability, Moderate Intellectual Disability
Chloe Hutt Vater; Maura DiSalvo; Alyssa Ehrlich; Haley Parker; Hannah O'Connor; Stephen V. Faraone; Joseph Biederman – Journal of Attention Disorders, 2024
Objective: To provide additional information about clinical features associated with adult ADHD in patients diagnosed in childhood compared to those first diagnosed in adulthood. Method: We stratified a sample of adults with ADHD into patients diagnosed in childhood versus adulthood and compared demographic and clinical characteristics. Results:…
Descriptors: Attention Deficit Hyperactivity Disorder, Age Differences, Clinical Diagnosis, Adults
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