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Abbott, David; Carpenter, John – Child Care in Practice, 2015
Duchenne muscular dystrophy (DMD) is an inherited, progressive and life-limiting neuromuscular disease that affects boys. During their lives, they experience a series of medical and surgical interventions. Research reported in this paper took place in England with 37 young men living with DMD and their families and explored their experiences of…
Descriptors: Neurological Impairments, Males, Foreign Countries, Barriers
Muskat, Barbara; Burnham Riosa, Priscilla; Nicholas, David B.; Roberts, Wendy; Stoddart, Kevin P.; Zwaigenbaum, Lonnie – Autism: The International Journal of Research and Practice, 2015
Youth with autism spectrum disorder are a vulnerable, often poorly understood patient group, who may experience periodic and chronic health challenges, in addition to their primary developmental social and communication problems. Developmental and behavioural challenges can complicate management of acute health-care needs. To date, there is an…
Descriptors: Autism, Hospitals, Pervasive Developmental Disorders, Pediatrics