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Direct linkAbbott, David; Carpenter, John – Child Care in Practice, 2015
Duchenne muscular dystrophy (DMD) is an inherited, progressive and life-limiting neuromuscular disease that affects boys. During their lives, they experience a series of medical and surgical interventions. Research reported in this paper took place in England with 37 young men living with DMD and their families and explored their experiences of…
Descriptors: Neurological Impairments, Males, Foreign Countries, Barriers
