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Hart, Laura C.; Saha, Heather; Lawrence, Stephanie; Friedman, Susan; Irwin, Polly; Hanks, Christopher – Journal of Autism and Developmental Disorders, 2022
Current primary care models are inadequate for adults on the autism spectrum. The Center for Autism Services and Transition (CAST) clinic was developed in 2014 using feedback from parents of adults on the autism spectrum and patient-centered medical home principles. We evaluated the reach of CAST's services. As of January 2021, 858 patients were…
Descriptors: Autism, Pervasive Developmental Disorders, Parents, Patients
Gilmore, Daniel; Krantz, Morgan; Weaver, Lindy; Hand, Brittany N. – Autism: The International Journal of Research and Practice, 2022
Autistic adults often experience barriers to healthcare that can cause their healthcare service use to be unique from other populations. We conducted a systematic review to gather the most recent evidence about how often autistic adults use five important healthcare services (the emergency department, hospitalization, outpatient mental health,…
Descriptors: Adults, Autism, Pervasive Developmental Disorders, Barriers
Kong, Xuejun; Liu, Jun; Chien, Tiffany; Batalden, Maren; Hirsh, David A. – Journal of Autism and Developmental Disorders, 2020
The prevalence of Autism Spectrum Disorder (ASD) is growing rapidly, affecting 1 in 59 children in the United States in 2018. Individuals with ASD currently receive fragmented care that threatens their health and well-being. Challenges of autism care include disconnections between the medical system and school supports, poor care coordination…
Descriptors: Autism, Pervasive Developmental Disorders, Agency Cooperation, Holistic Approach
Specialized Primary Care Medical Home: A Positive Impact on Continuity of Care among Autistic Adults
Hand, Brittany N.; Coury, Daniel L.; White, Susan; Darragh, Amy R.; Moffatt-Bruce, Susan; Harris, Lauren; Longo, Anne; Garvin, Jennifer H. – Autism: The International Journal of Research and Practice, 2021
While the medical home has proven effective at improving continuity of care among other populations, there is a paucity of literature testing the effectiveness of medical homes in serving the healthcare needs of autistic adults. We conducted a retrospective cohort study to compare the continuity of care of autistic adult patients at a specialized…
Descriptors: Autism, Pervasive Developmental Disorders, Access to Health Care, Health Services
Lindly, Olivia J.; Zuckerman, Katharine E.; Kuhlthau, Karen A. – Autism: The International Journal of Research and Practice, 2019
This study aimed to determine associations of healthcare access problems with services use among US children with autism spectrum disorder. We analyzed 2011-2014 National Health Interview Survey data on 651 children with autism spectrum disorder aged 2-17 years. There were three measures of healthcare access problems: (1) delays accessing…
Descriptors: Autism, Pervasive Developmental Disorders, Access to Health Care, Children
Shahidullah, Jeffrey D.; McClain, Maryellen Brunson; Azad, Gazi; Mezher, Katherine R.; McIntyre, Laura Lee – Intervention in School and Clinic, 2020
Optimal service delivery for students with autism spectrum disorder (ASD) often involves interdisciplinary care coordination between primary care clinicians, community-based providers, and school personnel such as school psychologists. Interdisciplinary care coordination includes communication and collaboration from multiple providers to…
Descriptors: Autism, Pervasive Developmental Disorders, Interdisciplinary Approach, Delivery Systems
Ames, Jennifer L.; Massolo, Maria L.; Davignon, Meghan N.; Qian, Yinge; Croen, Lisa A. – Autism: The International Journal of Research and Practice, 2021
Youth with autism spectrum disorder often have complex medical needs. Disruptions of healthcare during the transition from pediatric to adult healthcare may put youth with autism spectrum disorder at higher risk of medical emergencies and high medical costs. We conducted a study among transition-age youth (14-25 years old) receiving healthcare at…
Descriptors: Autism, Pervasive Developmental Disorders, Youth, Adolescents
Hyman, Susan L.; Johnson, Jara K. – Journal of Autism and Developmental Disorders, 2012
The pediatrician sees a child for 11 well child visits by their third birthday. The provision of continuous primary care supports development of trust with parents, provides opportunity for screening and surveillance of autism spectrum disorders (ASD), allows monitoring the progress of children requiring therapy, and a framework to support and…
Descriptors: Health Needs, Autism, Pediatrics, Physicians
Zeglam, Adel M.; Maouna, Ameena – Autism: The International Journal of Research and Practice, 2012
Background: Autism is a global disorder, but relatively little is known about its presentation and occurrence in many developing countries, including Libya. Aims: 1.) To estimate the prevalence of autistic spectrum disorders in children referred to Al-Khadra hospital (KH). 2.) To increase the awareness among pediatrician and primary health care…
Descriptors: Delayed Speech, Incidence, Autism, Language Impairments