ERIC Number: EJ1443111
Record Type: Journal
Publication Date: 2024-Oct
Pages: 23
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1747-0161
EISSN: EISSN-2047-6094
Streamlining the Ethical-Legal Governance of Cross-Border Health Data Sharing during Global Health Emergencies
Pamela Andanda; Langelihle Mlotshwa
Research Ethics, v20 n4 p812-834 2024
Global health emergencies often lead to a proliferation of health-related research and resultant data, which is shared across borders to help control the outbreak of disease and support decision-making regarding public health interventions. However, efforts to share data can be hindered by diverse international ethical and legal frameworks. The frameworks aim to govern coordinated processing, sharing and transfer of health data across borders thus placing burdens on researchers who are willing or obligated to share data. In this paper, we investigate ethical values and legal principles that can be applied to ensure a more streamlined approach in the governance of cross-border health data sharing during global health emergencies. A scoping review approach was used to better understand emerging evidence about issues related to the ethical and legal governance of cross-border health data sharing. We first highlight the challenges of sharing health data across borders. We then discuss how the challenges might be overcome through the application of ethical values and legal principles that have been identified in literature. This is followed by a proposal for possible ways of streamlining the governance of health data sharing from ethical and legal perspectives in a bid to better prepare for future global health emergencies and promote the responsible sharing of health data.
Descriptors: Ethics, Research Methodology, Public Health, Data, Global Approach, Medical Research, Information Dissemination, Legal Problems, Shared Resources and Services, Values, Emergency Programs, Privacy, Informed Consent, Accountability, Governance
SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://bibliotheek.ehb.be:2993
Publication Type: Journal Articles; Information Analyses
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A