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Tubig, Paul; McCusker, Darcy – Research Ethics, 2021
The development of novel neurotechnologies, such as brain-computer interface (BCI) and deep-brain stimulation (DBS), are very promising in improving the welfare and life prospects many people. These include life-changing therapies for medical conditions and enhancements of cognitive, emotional, and moral capacities. Yet there are also numerous…
Descriptors: Credibility, Researchers, Ethics, Neurosciences
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Winnie Lay; Loretta Gasparini; William Siero; Elizabeth K. Hughes – Research Ethics, 2025
Dynamic consent is increasingly recommended for longitudinal and biobanking research; however, the value of investing in such systems is unclear. We undertook a rapid review of the benefits and challenges of implementing dynamic consent by searching five databases (Ovid Medline, Ovid Embase, Scopus, Web of Science, Cumulative Index to Nursing and…
Descriptors: Databases, Research Reports, Researchers, Research Methodology
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Tejendra Pherali; Sara Bragg; Catherine Borra; Phil Jones – Research Ethics, 2025
The COVID-19 pandemic posed many ethical and practical challenges for academic research. Some of these have been documented, particularly in relation to health research, but less attention has been paid to the dilemmas encountered by educational and social science research. Given that pandemics are predicted to be more frequent, it is vital to…
Descriptors: COVID-19, Pandemics, Barriers, Ethics
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Carly Seedall; Lisa Tambornino – Research Ethics, 2024
This scoping review maps research ethics and integrity challenges and best practices encountered by research actors in the DACH countries (Germany, Austria, and Switzerland), including researchers, funders, publishers, research ethics committees, and policymakers, during the COVID-19 pandemic. The COVID-19 pandemic brought research and, in turn,…
Descriptors: Research, Ethics, Integrity, Barriers
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Aguinaldo, Jeffrey P. – Research Ethics, 2022
In this case study, I address the procedural ethics of conversation analysis (CA) and the collection of naturally occurring mundane interactions. I draw from the challenges that emerged from the institutional ethics review of the HIV, health and interaction study (the H2I Study), a CA project that sought to identify the practices through which…
Descriptors: Ethics, Research Methodology, Discourse Analysis, Acquired Immunodeficiency Syndrome (AIDS)
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Sankary, Lauren R.; Zelinsky, Megan E.; Ford, Paul J.; Blackstone, Eric C.; Fox, Robert J. – Research Ethics, 2023
The ethical recruitment of participants with neurological disorders in clinical research requires obtaining initial and ongoing informed consent. The purpose of this study is to characterize barriers faced by research personnel in obtaining informed consent from research participants with neurological disorders and to identify strategies applied…
Descriptors: Informed Consent, Medical Research, Neurological Impairments, Barriers
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Nabukenya, Sylvia; Ochieng, Joseph; Kaawa-Mafigiri, David; Munabi, Ian; Nakigudde, Janet; Nakwagala, Frederick Nelson; Barugahare, John; Kwagala, Betty; Ibingira, Charles; Twimwijukye, Adelline; Sewankambo, Nelson; Sabakaki Mwaka, Erisa – Research Ethics, 2022
This study aimed to explore experiences and practices of key research team members in obtaining informed consent for pharmacogenetics research and to identify the approaches used for enhancing understanding during the consenting process. Data collection involved 15 qualitative, in-depth interviews with key researchers who were involved in…
Descriptors: Researchers, Pharmacology, Drug Therapy, Acquired Immunodeficiency Syndrome (AIDS)
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Raffaella Ravinetto; Joyce Adhiambo; Joshua Kimani – Research Ethics, 2024
Research represents an essential component of the response to infectious disease outbreaks and to other public health emergencies, whether they are localised, of international concern, or global. Research conducted in such contexts also comes with particular ethics challenges, the awareness of which has significantly grown following the Ebola…
Descriptors: Research Methodology, Ethics, Emergency Programs, COVID-19
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Kaplan, Lennart; Kuhnt, Jana; Picot, Laura E.; Grasham, Catherine Fallon – Research Ethics, 2023
Across disciplines there is a large and increasing number of research projects that rely on data collection activities in low- and middle-income countries (LMICs). However, these are accompanied by an extensive range of ethical challenges. While the safeguarding of study participants is the primary aim of existing ethics guidelines, this paper…
Descriptors: Guidelines, Ethics, Barriers, Researchers
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Giulia Inguaggiato; Claudia Pallise Perello; Petra Verdonk; Linda Schoonmade; Pamela Andanda; Mariette van den Hoven; Natalie Evans – Research Ethics, 2024
Responses to the COVID-19 pandemic globally disrupted lives and contributed to the exacerbation of pre-existing inequalities. Women in research were also affected. The prominent role that women played in professional and personal care duties had a detrimental effect on their research outputs, potentially hindering their career progression.…
Descriptors: Experience, Females, Researchers, COVID-19
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Datta, Ranjan – Research Ethics, 2018
How does one decolonize and reclaim the meanings of research and researcher, particularly in the context of Western research? Indigenous communities have long experienced oppression by Western researchers. Is it possible to build a collaborative research knowledge that is culturally appropriate, respectful, honoring, and careful of the Indigenous…
Descriptors: Researchers, Research Methodology, Indigenous Populations, Social Bias
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Shanks, Kelsey; Paulson, Julia – Research Ethics, 2022
As the prevalence of conflict and fragility continue to rise around the world, research is increasingly heralded as a solution. However, current ethical guidelines for working in areas suffering from institutional and social fragility, insecurity or violent conflict have been heavily critiqued as highly abstract; focussed only on data collection;…
Descriptors: Ethics, Conflict, Guidelines, Social Problems