Discusses progeria (or Hutchinson-Gilford syndrome), a rare childhood disorder that invariably results in death during adolescence. Describes the major medical aspects of progeria, and discusses the psychosocial implications of the disorder with particular emphasis on grief-triggered reactions. Presents an overview of psychosocial intervention…

Considers Directive to Physician, Durable Power of Attorney for Healthcare Decisions, and Medical Ethics Decision Form. Notes importance of process individuals go through in defining what quality of life means to them. Sees current struggle being individual articulation of one's wishes based on personal definition of quality of life set forth in…