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Weiler, Spencer; Birnbaum, Matthew; Westbrook, Philip – Educational Policy, 2023
Due to advances in medical treatments, students with terminal illnesses are more likely to attend public schools, increasing the possibility that they may die on school property. However, educational health plans often fail to consider end-of-life care decisions. In the absence of federal or state statutes, school boards are left to navigate the…
Descriptors: Children, Youth, Adolescents, School Districts
Dufresne, Robin M.; Baltrinic, Eric R.; Laux, John M.; Reynolds, Jennifer – Mid-Western Educational Researcher, 2020
Many counselors believe suicidal ideation in a terminally ill client can be rational (Rogers et al, 2001). One hundred and fifty-three counselors rated their perceived competence to counsel individuals who are rationally suicidal. Data were analyzed with non-parametric statistics. Findings suggest participants with more education, more years of…
Descriptors: Suicide, Terminal Illness, Counselor Attitudes, Counseling Effectiveness
Tuffrey-Wijne, Irene; Finlayson, Janet; Bernal, Jane; Taggart, Laurence; Lam, Claire Kar Kei; Todd, Stuart – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about death with people with intellectual disability facing terminal illness or bereavement. Method: Staff who support people with intellectual disability in the UK (n = 690)…
Descriptors: Death, Adults, Terminal Illness, Grief
Connor, Eilis O.; Corcoran, Yvonne – Journal of Intellectual Disabilities, 2022
This study elicited the experiences of nurses caring for children with life-limiting conditions and their family, within a community based intellectual disability service. A qualitative descriptive research approach was adopted where purposeful sampling recruited 10 participants. Data was collected using one to one semi-structured interviews and…
Descriptors: Nurses, Children, Intellectual Disability, At Risk Persons
Stead, Amanda; Dirks, Kyla; Fryer, Melissa; Wong, Sami – Topics in Language Disorders, 2020
Speech-language pathologists often lack preparation for palliative care practice and this lack of training can lead to poor outcomes for patients. Lack of training can additionally lead to burnout and compassion fatigue in clinicians. Careful implementation of training is necessary to increase the knowledge base for palliative practice and careful…
Descriptors: Allied Health Personnel, Speech Language Pathology, Allied Health Occupations Education, Health Services
Adistie, Fanny; Lumbantobing, Valentina B. M.; Maryam, Nenden Nur Asriyani – Child Care in Practice, 2020
Purpose: The response of each child to terminal illness treatment is highly individual. This will certainly affect the level and type of perceived needs. This study is conducted to examine the needs of children with terminal illness from the perspective of nurses and parents. Method: A qualitative descriptive study was conducted in this research.…
Descriptors: Children, Terminal Illness, Nurses, Parent Attitudes
Barnes, Jonathan; Paterson-Brown, Lucy – Journal of Education and Training Studies, 2017
Introduction: Malawi is one of the world's poorest countries with very limited healthcare spending and a lack of post-graduate training for healthcare workers, including in critical illness management. Critical illness simulation courses have been shown to be an effective training tool and form a key part of training for healthcare professionals…
Descriptors: Foreign Countries, Medical Services, Patient Education, Simulation
Turner, N.; Almack, K. – International Journal of Social Research Methodology, 2017
This article contributes to a growing literature that takes a more nuanced approach to exploring the complexities of relationships and negotiations with gatekeepers. Using our study of young people living with a parent at the end of life as a 'critical case' of sensitive qualitative research, we discuss how far from being a smooth, linear process,…
Descriptors: Social Science Research, Participant Characteristics, Recruitment, Youth
Wark, Stuart – Journal of Intellectual & Developmental Disability, 2015
The author of this conceptual article was awarded a Churchill Fellowship to travel to the United States, Ireland, and United Kingdom to meet with researchers, practitioners, and community agencies and review how support for people with intellectual disability is provided. A specific focus was upon provision of care for individuals who were either…
Descriptors: Aging (Individuals), Older Adults, Terminal Illness, Health Services
Pascoe, Ashleigh; Breen, Lauren J.; Cocks, Naomi – International Journal of Language & Communication Disorders, 2018
Background: Speech pathologists have a pivotal role in palliative care, assisting patients with swallowing and communication disorders, yet very little is known about the preparedness of speech pathologists to work in this field. Aims: To investigate the preparedness of speech pathologists for working in palliative care. The term 'palliative care'…
Descriptors: Speech Language Pathology, Questionnaires, Online Surveys, Statistical Analysis
Supiano, Katherine P.; Berry, Patricia H. – Journal of Social Work Education, 2013
Research suggests that better educational preparation is necessary to assure that health care social workers have the competencies essential for high quality interdisciplinary palliative care practice. This study is a qualitative evaluation of those elements contributing to competence and confidence in interdisciplinary practice skills of second…
Descriptors: Social Work, Caseworkers, Qualitative Research, Phenomenology
Ryan, Karen; Guerin, Suzanne; Dodd, Philip; McEvoy, John – Journal of Applied Research in Intellectual Disabilities, 2011
Background: Little is known of paid carers' perspectives when caring for people with intellectual disabilities at the end-of-life. Materials and methods: Sixty four individuals from intellectual disability services took part in 12 focus groups. Interviews were analysed using framework analysis. Results: Participants wanted to provide palliative…
Descriptors: Caring, Mental Retardation, Focus Groups, Caregiver Attitudes
Sharp, Shane; Carr, Deborah; Macdonald, Cameron – Social Forces, 2012
We use Wisconsin Longitudinal Study data (n = 2,678) to assess the effects of religious denomination and ideology on end-of-life treatment preferences in two hypothetical terminal illness scenarios: physical pain and severe cognitive impairment. We found no statistically significant differences when comparing traditionally defined religious…
Descriptors: Protestants, Pain, Longitudinal Studies, Terminal Illness
Sodowsky, Karen – Qualitative Report, 2012
This article is taken from a larger longitudinal study that used caregiver interviews, caregiver surveys, and caregiver statistical information of one community. The interviews were conducted with six spousal caregivers to examine the narratives produced by spouses actively caring for their partners with dementia. The spousal caregivers were…
Descriptors: Dementia, Caregivers, Spouses, Caring
Walker, Rheeda L.; Flowers, Kelci C. – Suicide and Life-Threatening Behavior, 2011
Race group differences in suicide death classification in a sample of 109 Black and White university students were examined. Participants were randomly assigned to read three vignettes for which the vignette subjects' race (only) varied. The vignettes each described a circumstance (terminal illness, academic failure, or relationship difficulties)…
Descriptors: College Students, Correlation, Death, Academic Failure