A central tenant of early childhood intervention (ECI) is collaboration between professionals and the caregivers of children receiving these services. There are limited studies on caregiver perceptions of collaboration in ECI teams particularly in resource-limited countries. Sixty-four caregivers participated in this study by completing a…

Purpose: To explore caregiver perceptions of the socio-environmental issues around evening meal ("teatime") which influence choking. Methodology: A qualitative study of caregivers witnessing a choking incident was undertaken. Semi-structured interviews explored perceptions of the causes. Data were analysed using thematic analysis.…

Background: This study aimed to develop a self-report measure of paid caregivers' empathy towards people with intellectual disabilities. Materials and Methods: Following questionnaire development, 194 staff working in services for people with intellectual disabilities completed self-report questionnaires, including the new empathy measure. The…

The purpose of the current study was to survey and interview caregivers of children with disabilities (ages 2-5 years) to obtain their input as to whether current playground equipment meets their child's needs. A total of 149 participants agreed to participate. Caregivers (i) indicated that their child with a disability could not fully participate…

Background: A faith-based (pseudonym, Adam's House -- AH) and a non-faith-based care service (pseudonym, Greenleaves -- GL) were explored to find out if and how spiritual support was provided for people with intellectual and developmental disabilities (IDDs). Method: Six months were spent volunteering within each service and a mixed-methods…

Background: Although studies have examined quality of life (QOL) among family caregivers of individuals with autism spectrum disorder (ASD), little is known about potential differences in QOL based on the age of the individual with ASD, particularly in relation to caregivers' needs, beliefs and coping mechanisms. Method: This study investigated…

The aim of this study was to identify sensory subtypes in children on the autism spectrum using the Short Sensory Profile-2 (SSP-2). Caregivers of children on the autism spectrum aged 4-11 years (n = 271) completed the SSP-2. Analysis using Dirichlet process mixture model identified a two-cluster model which provided the best solution to subtype…

Remote learning programs were rapidly implemented throughout the COVID-19 pandemic during school closures. We drew on an ongoing longitudinal study of a cohort of children in the Greater Accra Region of Ghana to survey children (N = 1,844), their caregivers, and teachers to examine learning experiences during the ten months of school closures in…

This study explored differences in caregiver-child interactions following children's information-seeking questions. Naturalistic speech from thirty-seven 4-year-olds and their caregivers was used to explore children's information-seeking questions, the caregiver's response, and children's subsequent follow-up. Half of the families were…

The purpose of the present study was to understand how caregiver stress and coping behaviors impact African American and Euro-American families differently when caring for a child with autism. This study used discriminate function analysis to contrast the stress and coping profiles of Euro-American caregivers who are more acculturated with the…

Introduction: This research investigated the views of different stakeholders regarding the specialist mental health service for people with intellectual disabilities (ID) in Singapore. Method Interviews were conducted with mental health professionals, family carers and service users with ID. Framework analysis was adopted to identify common…

This mixed-methods study explored (1) family day care (FDC) educators' confidence and capability to support children's mental health, and (2) assessed their own mental health and wellbeing. Descriptive analysis of the survey (n = 144) highlighted that most participants were in the normal range for mental health and wellbeing; however, identifying…

Participation is the goal of Swedish disability policy, but it is difficult to achieve for adults with profound intellectual (and multiple) disabilities (PI(M)D). Since these adults are dependent on others in every aspect of their lives, others control their ability to participate in everyday life decisions. This study used observations, analyzed…

The abrupt onset of the COVID-19 pandemic necessitated an unprecedented shift to remote schooling for students across the United States and required many caregivers to take a primary or secondary role as schoolteacher. The goal of this study was to better understand caregivers' experiences of schooling from home during the spring 2020 COVID-19…

Primary caregivers experience consequences from being in close contact to a person with autism spectrum disorder (ASD). This study used the Involvement Evaluation Questionnaire to explore the level of consequences of 104 caregivers involved with adults with High Functioning ASD (HF-ASD) and compared these with the consequences reported by…