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d'Abrera, J. C.; Holland, A. J.; Landt, J.; Stocks-Gee, G.; Zaman, S. H. – Journal of Intellectual Disability Research, 2013
Background: Research into specific illnesses and the development of new treatments may only become possible as new technologies become available. When used for research, such technologies may best be described as "intrusive", in that they require a considerable willingness and commitment on the part of the participants. This has…
Descriptors: Down Syndrome, Dementia, Ethics, Neurological Impairments

Hellner, Britt Mari; Norberg, Astrid – International Journal of Aging and Human Development, 1994
Interviewed two expert caregivers about their experiences of caring for severely demented patients. Ethical reasoning, exemplified by tender descriptions of relatedness to patients, indicated that expert caregivers used sound knowledge combined with imagination, empathy, and intuition to grasp situation, where patient is regarded as person with…
Descriptors: Alzheimers Disease, Caregivers, Empathy, Ethics

Hasselkus, Betty Risteen – Gerontologist, 1997
Examines the ethical aspects of the experience of providing day care to dementia patients. Results, based on telephone interviews (N=40), indicate that ethical challenges arise in everyday incidents when participants, staff, or family members "cross the line" of acceptable behavior. Staff responses ranged from benign manipulation to…
Descriptors: Adult Day Care, Alzheimers Disease, Caregiver Role, Ethics