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Pereira, Rafaela Catelan Martins; Apis, Aline; dos Santos, Thamires Rosa; de Avó, Lucimar Retto da Silva; Pilotto, Rui Fernando; Germano, Carla Maria Ramos; Melo, Débora Gusmão – Journal of Intellectual Disabilities, 2023
This cross-sectional and descriptive study examined the family quality of life (FQoL) among 72 Brazilian families who have children with Williams syndrome, a rare genetic disorder in which most individuals have an intellectual disability, usually mild. Data were collected using sociodemographic and clinical data forms and the Beach Center FQoL…
Descriptors: Foreign Countries, Quality of Life, Genetic Disorders, Intellectual Disability
Reilly, Deirdre; Huws, Jaci; Hastings, Richard; Vaughan, Frances – Intellectual and Developmental Disabilities, 2010
Individuals with Down syndrome are at increased risk of congenital heart conditions (CHCs), and mortality is higher in people with Down syndrome and a CHC than those without (J. C. Vis et al., 2009). As a consequence, parents of children with Down syndrome and a CHC are more likely to outlive their child. In this research, semistructured…
Descriptors: Down Syndrome, Parents, Child Rearing, At Risk Persons
Henretta, John C. – Journal of Health and Social Behavior, 2007
This article examines the relationship between a woman's childbearing history and her later health and mortality, with primary focus on whether the association between them is due to early and later socioeconomic status. Data are drawn from the Health and Retirement Study birth cohort of 1931-1941. Results indicate that, conditional on reaching…
Descriptors: Socioeconomic Status, Marital Status, Heart Disorders, Incidence