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Laermans, P.; Morisse, F.; Lombardi, M.; Gérard, S.; Vandevelde, S.; de Kuijper, G.; Audenaert, K.; Claes, C. – International Journal of Developmental Disabilities, 2023
Introduction: Adults with intellectual disabilities have an increased vulnerability to mental health problems and challenging behaviour. In addition to psychotherapeutic or psychoeducational methods, off-label pharmacotherapy, is a commonly used treatment modality. Objective: The aim of this study was to establish evidence-based guideline…
Descriptors: Adults, Intellectual Disability, Drug Therapy, Behavior Problems
Carli Friedman – Journal of Developmental and Physical Disabilities, 2025
Natural supports are informal relationships with family, friends, neighbors, and community members that serve as a source of connection and support, and as a safety net. The aim of this study was to examine the impact of natural supports on different areas of quality of life of people with disabilities. Given the theorized importance of natural…
Descriptors: Disabilities, Family Role, Friendship, Role
Bruinsma, Eke; van den Hoofdakker, Barbara J.; Hoekstra, Pieter J.; de Kuijper, Gerda M.; de Bildt, Annelies A. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Effects of staff provided positive behaviour support (PBS) for individuals with intellectual disabilities are unclear. Method: Using a multicentre non-randomised cluster controlled design, 26 teams of residential group homes, including 245 staff members of 167 individuals with intellectual disabilities, were allocated to a PBS or…
Descriptors: Adults, Intellectual Disability, Positive Behavior Supports, Allied Health Personnel
Michelle C. Fenesy; Steve S. Lee – Journal of American College Health, 2024
Objective: We employed latent profile analysis (LPA) to discern configurations of executive functioning (EF) and neuroticism (NE) and tested their concurrent validity with respect to internalizing and externalizing problems and physical health. Participants: A total of 125 college students completed the study. Methods: Participants self-reported…
Descriptors: Executive Function, Neurosis, Behavior Problems, Mental Health
Sarah E. Bjornson; Adrienne Perry – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Children with severe developmental disabilities are frequently excluded from research, and little is known about their quality of life (QoL). Using a mixed-methods approach, this study examined relationships between school factors and QoL for these children and their families. Method: 171 parents of children with severe developmental…
Descriptors: Students with Disabilities, Developmental Disabilities, Severe Disabilities, Quality of Life
Duncan, Amanda; Shepley, Collin – Journal of Early Intervention, 2023
For decades, researchers and providers of adult-directed early behavioral intervention services have made conceptual arguments linking the receipt of such services to improvements in family and family member quality of life. To date, there has not been a review of the literature to empirically evaluate this claim. Therefore, we conducted a…
Descriptors: Adults, Early Intervention, Quality of Life, Family Environment
Bruinsma, Eke; van den Hoofdakker, Barbara J.; Hoekstra, Pieter J.; de Kuijper, Gerda M.; de Bildt, Annelies A. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: This study aimed to examine the associations between individual staff and staff team characteristics and quality of life of individuals with intellectual disabilities and challenging behaviours. Method: With multilevel analyses, we examined educational level, experience, attitudes and behaviours of 240 staff members, in relation to…
Descriptors: Quality of Life, Individual Characteristics, Correlation, Intellectual Disability
Greg Leigh; Teresa Y. C. Ching; Linda Cupples – Volta Review, 2024
This article discusses findings from the first 10 years of the Longitudinal Outcomes of Children with Hearing Impairment (LOCHI) Study, which includes more than 450 deaf and hard of hearing Australian children whose hearing losses were identified variously through newborn hearing screening or later paths to confirmation and intervention.
Descriptors: Foreign Countries, Hearing Impairments, Deafness, Children
de Kuijper, Gerda M.; Den Besten-van Ravenswaaij, Janneke J. C.; Hoekstra, Pieter J.; de Bildt, Annelies – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Interventions for challenging behaviours in individuals with intellectual disabilities benefit from outcome monitoring that takes clients' preferences into account. We determined clients' and representatives' preferred outcome domains and measures to secure their involvement in treatment decisions for challenging behaviours. Method: We…
Descriptors: Behavior Problems, Intellectual Disability, Outcomes of Treatment, Intervention
Julia R. Badger; Carolina Guzman Holst; Paul Thompson; Lucy Bowes; Rachel Hayes; Susy Clarkson; Judy Hutchings; Richard P. Hastings – British Educational Research Journal, 2024
Natural disasters happen across the world. The situations are different but the disruption to children's education and wellbeing is similar. This study focused on the school context changes caused by the COVID-19 global disaster, and the impact of these changes on children's mental health. The aim was to better understand the associations between…
Descriptors: COVID-19, Pandemics, Mental Health, Child Health
Bolbocean, Corneliu; Rhidenour, Kayla B.; McCormack, Maria; Suter, Bernhard; Holder, J. Lloyd – Journal of Autism and Developmental Disorders, 2023
Between July 2020 and January 2021, 230 principal caregivers completed a questionnaire to measure proxy-assessed health-related quality of life outcomes (HRQoL), behavioral outcomes in children with syndromic autism spectrum disorders and COVID-19 induced changes to lifestyle and environments. HRQoL and behavioral outcomes reported earlier during…
Descriptors: COVID-19, Pandemics, Quality of Life, Health
Milner, Victoria; Mandy, Will; Happé, Francesca; Colvert, Emma – Autism: The International Journal of Research and Practice, 2023
Many autistic individuals camouflage socially atypical behaviours. Evidence suggests autistic females camouflage more than autistic males. Although camouflaging may confer some benefits, it is also associated with negative outcomes including poorer mental health and well-being. Those with high autistic traits but no clinical diagnosis are not…
Descriptors: Autism Spectrum Disorders, Gender Differences, Symptoms (Individual Disorders), Behavior
Mackay, Jessica; Nixon, Gillian M.; Lafferty, Antony R.; Ambler, Geoff; Kapur, Nitin; Bergman, Philip B.; Schofield, Cara; Seton, Chris; Tai, Andrew; Tham, Elaine; Vora, Komal; Crock, Patricia; Verge, Charles; Musthaffa, Yassmin; Blecher, Greg; Caudri, Daan; Leonard, Helen; Jacoby, Peter; Wilson, Andrew; Choong, Catherine S.; Downs, Jenny – Journal of Autism and Developmental Disorders, 2022
Prader-Willi syndrome (PWS) is a rare genetic disorder characterised by neurodevelopmental delays, hyperphagia, difficulties with social communication and challenging behaviours. Individuals require intensive supervision from caregivers which may negatively affect caregiver quality of life. This study used data collected in the Australasian PWS…
Descriptors: Caregivers, Genetic Disorders, Intellectual Disability, Developmental Disabilities
Deb, Shoumitro; Limbu, Bharati; Unwin, Gemma L.; Weaver, Tim – Journal of Mental Health Research in Intellectual Disabilities, 2023
Background: Overmedication of people with intellectual disabilities, particularly when psychotropic medications are used for challenging behavior (CB) in the absence of a psychiatric disorder, is a significant public health concern. Support staff play a pivotal role in influencing the prescribing process. Staff views and attitudes toward…
Descriptors: Drug Therapy, Intellectual Disability, Behavior Problems, Caregiver Attitudes
Davies, Bronwen; Josham, Scarlett; Francis, Nicky – Journal of Intellectual Disabilities, 2021
This service evaluation comprised pre- and post measures with service users and their carers on admission to and discharge from an assessment and treatment (A&T) unit. The Behaviour Problems Inventory (BPI), Psychiatric Assessment Scale for Adults with Developmental Disabilities Checklist--Revised (PASSAD) and World Health Organisations…
Descriptors: Outcome Measures, Intellectual Disability, Health Services, Behavior Problems