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A Qualitative Pilot Study of Adult AAC Users' Experiences Related to Accessing and Receiving Mental Health Services
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Adrianna M. Noyes; Krista M. Wilkinson – Augmentative and Alternative Communication, 2024
There is currently limited research related to mental health supports for individuals who use AAC, particularly about the actual lived experiences of AAC users who receive mental health services. There may be alterations to mental health services for individuals who use AAC. The aim of this study was to gain the perspectives of AAC users on…
Descriptors: Pilot Projects, Adults, Augmentative and Alternative Communication, Users (Information)
Disabling Discourses and Some Implications for Parent Leadership in Special Education Policy and Practice
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Liasidou, Anastasia; Hadjiyiannakou, Anastasia – European Journal of Special Needs Education, 2019
The paper aims to explore ways in which mothers of children with cerebral palsy (CP) attempt to voice their concerns about current discourses and power imbalances enshrined in special education policy and provision. Mothers' narratives are important in making transparent the multiple forms of 'disablism' experienced by them in their attempts to…
Descriptors: Special Education, Educational Policy, Mothers, Cerebral Palsy
Developing Programmes to Promote Participation in Sport among Adolescents with Disabilities: Perceptions Expressed by a Group of South African Adolescents with Cerebral Palsy
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Bantjes, Jason; Swartz, Leslie; Conchar, Lauren; Derman, Wayne – International Journal of Disability, Development and Education, 2015
Adolescents with disabilities in developing countries frequently have limited access to sporting opportunities and comparatively little is known of their lived experiences and preferences. We set out to understand what a group of adolescents with cerebral palsy (CP) living in South Africa perceive to be important components of programmes developed…
Descriptors: Student Participation, Cerebral Palsy, Program Development, Disabilities
"It's Our Job": Qualitative Study of Family Responses to Ableism
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Neely-Barnes, Susan L.; Graff, J. Carolyn; Roberts, Ruth J.; Hall, Heather R.; Hankins, Jane S. – Intellectual and Developmental Disabilities, 2010
Forty-five parents of children with autism, cerebral palsy, Down syndrome, and sickle cell disease participated in 8 focus groups. Parents discussed how they, the child with the disability, and the siblings addressed community perceptions about the child's disability. Themes evolving from the interviews included (a) support and lack of support,…
Descriptors: Siblings, Autism, Focus Groups, Attitudes toward Disabilities
"If I Knew Then What I Know Now": Parents' Reflections on Raising a Child with Cerebral Palsy
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Reid, Allison; Imrie, Heather; Brouwer, Emily; Clutton, Shannon; Evans, Jan; Russell, Diane; Bartlett, Doreen – Physical & Occupational Therapy in Pediatrics, 2011
In this study we investigated experiences of parents of children with cerebral palsy (CP) to identify areas in which health care providers and educators could improve practice. A second objective was to create educational material for parents of young children newly diagnosed with CP. A purposive sample of nine parents, who previously participated…
Descriptors: Parent Materials, Quality of Life, Cerebral Palsy, Parents
A Mother's Story about Raising Children with Disabilities
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Warsi, Sadia – Journal of the American Academy of Special Education Professionals, 2009
The purpose of the study was to understand a mother's perspective about raising children with disabilities. This was a unique case study because the mother was a highly educated advocate in the special education profession and the process was very educational for the researcher. A detailed description of the methodology is provided to encourage…
Descriptors: Mothers, Disabilities, Child Rearing, Case Studies