Background: Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about death with people with intellectual disability facing terminal illness or bereavement. Method: Staff who support people with intellectual disability in the UK (n = 690)…

Background: Speech pathologists have a pivotal role in palliative care, assisting patients with swallowing and communication disorders, yet very little is known about the preparedness of speech pathologists to work in this field. Aims: To investigate the preparedness of speech pathologists for working in palliative care. The term 'palliative care'…

Functional Measurement (FM) has been applied to a variety of settings that can be considered as "extreme" settings; that is, settings involving participants with severe cognitive disabilities or involving unusual stimulus material. FM has, as instance, been successfully applied for analyzing (a) numerosity judgments among children as…

Dying persons are encouraged to name as durable power of attorney for health care (DPAHC) someone who will thus be empowered to make end-of-life treatment decisions for them in the event that they become incapacitated. We use data from the Wisconsin Longitudinal Study to investigate whether and whom older adults designate as their DPAHC. DPAHC…

The relationship between social support and the welfare of the recipient of support has been well documented in the clinical and research literature; however, HIV-positive individuals have seldom been examined in this context. This study attempts to bridge this gap by examining the perceived availability of social support of 77 persons living with…