Background: Respite care has traditionally been conceptualised as a short residential break which allows families a break from caring responsibilities. In recent years, alternative respite services have been developed which promote greater social integration and normalisation for people with intellectual and other disabilities. Specific aim: The…

Background: Respite supports are highly valued by persons with disabilities and their families/carers. In Ireland, there has been regular commentary in relation to a lack of respite services, with users and other stakeholders reporting limited access, inequity of provision, and long waiting lists for support. Materials and Methods: Much of the…

Background: Respite care is an essential support for people with intellectual disabilities and their families; however, there is limited evidence examining different models of respite care. The present research examined quality of life among adults with intellectual disabilities using three different models of respite services in Ireland. Method:…

Family caregivers of physically and cognitively impaired older adults face multiple challenges when providing care, including responses to tangible and anticipated losses. However, little is known about the grief experiences of family caregivers and how these might differentially influence the care-related behaviors of spouses and adult children.…

Research-informed policy and practice is needed for older caregivers of adult sons/daughters with disabilities. These caregivers are often under tremendous stress because of failing health, financial pressures, bereavement and worry about the future of their sons/daughters. Twenty-nine older parents/caregivers of 27 adults with intellectual and/or…

Background: This study explored the experiences of working mothers with an adult child with intellectual disabilities to understand how they reconcile paid work and care responsibilities. Methods: Fifteen working mothers in Taiwan with an adult child with intellectual disabilities were interviewed, and an interpretative phenomenological approach…

Two-thirds of the people registered on the Irish National Intellectual Disability Database (NIDD) reside at home with family members frequently supporting them (Kelly et al., "National Intellectual Disability Database Committee Annual Report 2006," Health Research, 2007). Use of respite care services by parents with a child/adult with an…

This study explored the relationship between four types of autonomy (health autonomy, informational autonomy, living autonomy, and financial autonomy) and the acceptance of five types of long-term care (adult day care, respite care, assisted living, unit care, and group home) for the elderly in Taiwan. Data were collected from 167 middle-aged and…

Informal carers of an adult with mental illness have asked that respite care be an integral component of mental health service provision. The present study involved a pilot investigation of the effectiveness of accessing respite care for carers of individuals with a mental illness. It was hypothesised that compared to carers who have not accessed…

Background: This study examines the effects and associated factors of respite care, which was legislated as a community service for adults with an intellectual disability (ID) in Taiwan in 1997. Method: A total of 116 family carers who live with an adult with ID and have utilised the respite care program were surveyed using standardised measures.…

The families of 26 adults with autistic spectrum disorders (ASDs) who either lived at home or maintained close contact with their families were interviewed about their social and psychological needs related to caring for the person with ASD. In contrast to previous studies of familial carers of children with ASDs, a strong association between…

A case study of a 25-year-old man with moderate mental retardation who engaged in self-injurious behavior included a functional analysis to determine the effects of the presence and absence of respite care. Results demonstrated a relationship between the presence of self-injury and the occurrence of respite care the previous evening. Altering the…

Analyses involving 105 biological mothers of children (ages birth to adult) with mild/moderate or severe/profound retardation revealed a low level of use of respite care across groups and no significant difference between groups. The discrepancy between demonstrated need and service utilization is highlighted. (Author/JDD)

Two studies evaluating a video-based instructional package for training 12 respite care providers found that performance during simulated situations improved in 5 of 6 skill areas, with no differences whether videotapes were viewed alone, with a partner, or with structured group training. Correct responding was generalized and skills were…

The immediate and short-term effects of a preplanned, 10-day overnight respite on 14 mothers of school-age and adult children with multiple disabilities were evaluated. Results indicated that, during respite, mothers experienced increased well-being and less depression, and these changes continued after respite. Mothers also exhibited changes in…