Research-informed policy and practice is needed for older caregivers of adult sons/daughters with disabilities. These caregivers are often under tremendous stress because of failing health, financial pressures, bereavement and worry about the future of their sons/daughters. Twenty-nine older parents/caregivers of 27 adults with intellectual and/or…

This study of 78 mothers of mentally retarded children and adults found that respite care acts as a differential service that can enhance coping resources and is of most benefit to high self-esteem mothers of young developmentally disabled children, especially as a home-based model. (Author/JDD)

Parents of 36 autistic children were assessed on child functioning and family stress variables in relation to use of respite care services. Results suggest that parents with more difficult children need and use respite care more than others. Nonusers of respite care reported a higher perception of social support than users. (JDD)

The project sought to determine the content and form of materials that would enable parents of children with disabilities to become informed critical consumers of respite services. Project activities included establishment and utilization of a national advisory panel; an indepth review of the literature on family supports, systems change, and…

This study examined provision of services to children with developmental disabilities and their families in the context of requirements of Part H of the Individuals with Disabilities Education Act, which requires family centered services for infants and toddlers. Focus group discussions were held with health professionals at two sites in each of…

This policy brief reports on a study of how families and agencies cope with growing waiting periods for community services for adults who have mental retardation or developmental disabilities (MR/DD). Preliminary information looks at reasons for long waits, characteristics of families waiting for services, and impact of adult members with MR/DD on…

Two surveys, one qualitative and one quantitative, were conducted of the opinions and experiences of New York State parents of children with learning delays and disabilities regarding parental labor force participation, child care options, and preferences in state policies. A total of 141 parents responded to the quantitative survey and 210 to the…