This article presents the story of Wesley Brooks, a freshman at Middlesex County College and someone who will not let his disability impede him from what he sets out to achieve in life. Brooks was born 24 weeks early and weighed just under one pound. This resulted in him having cerebral palsy, which impacts his motor movement. He also had to…

In these challenging times of cutbacks in public funding for social services programs, parents and grass roots organizations continue to make a difference in their communities with innovative initiatives that are enhancing the lives of people with developmental and physical disabilities. In New York, a track team of speedsters with disabilities is…

The assessment of cognitive ability in students with the most severe disabilities presents a challenge to the clinicians who are charged with this task. This article is the second of a two-part series that summarizes what is currently known about effective assessment of the cognitive ability of students with significant impairments in order to…

With advances in obstetric and perinatal management, the incidence of intraventricular hemorrhage in premature infants has declined, while periventricular leukomalacia remains a significant concern. It is now known that brain injury in children born preterm also involves neuronal-axonal disease in supratentorial and infratentorial structures. The…

Vacations for exceptional families require flexibility, persistence, a sense of humor, and a view of the world as the glass being half full. In this article, the author shares her family's summer vacation experience. If "getting there is half the fun," the author's family has had more than their share of fun times. She has learned the…

This article highlights the importance of the information obtained from the family in the implementation of the augmentative and alternative communication (AAC) system. The objective was to investigate the communicative abilities of children with severe communication deficit through their parents' reports within the family routine. Eleven parents…

In this 12 installment Medical Home series, "Exceptional Parent" presents a case study about the American Academy of Pediatrics' Medical Home Initiative. A "Medical Home" is not a building but an approach to providing healthcare services to children with special healthcare needs. This sixth part of the Medical Home series describes the experiences…

Laurie and Jeff Schutz can't imagine how they ever survived. It was not that long ago that the Schutz family of five was living in an 1,100 square foot, two bedroom house. Under normal circumstances, this would have been cramped for any family. The Schutzes, however, have a son with cerebral palsy. Laurie Schutz had about as normal a first-time…

In this article, the author shares the story of Will Poulos, a hockey player who has developmental and physical disabilities (mild mental retardation and left cerebral palsy). Will has overcome tremendous obstacles in his life. He was born at 28 weeks in 1986 at three pounds, one ounce, and 19 inches long. He was very sick; his odds for survival…

Debbie is a 37 years old woman with a spastic diplegic cerebral palsy. The cerebral palsy results in weakness and stiffness in many of her muscles, especially those in her legs, and these things affect her functional abilities. She is able to sit on her own but needs chairs that have support on the back and on the sides. This tenth article of a…

This article describes the struggles of two tough moms who team up to start their own company. Fed up with a lack of stylish, properly-fitting shoes for their children with cerebral palsy, they established "Keeping Pace" which currently offers a selection of stylish girls' and boys' athletic sneakers and casual dress shoes for boys, all sold…

The Gross Motor Function Classification System (GMFCS) for cerebral palsy has been widely used internationally for clinical, research, and administrative purposes. This paper recounts the ideas and work behind the creation of the GMFCS, reports on the lessons learned, and identifies some philosophical challenges inherent in trying to develop an…

Children with developmental disabilities are at increased risk for epilepsy with a prevalence rate higher than the general population. Some of the more common developmental disorders in childhood and the features of epilepsy in these conditions are discussed. Specifically, autism, cerebral palsy, mental retardation, and attention deficit and…

This case report describes the use of treadmill training without body weight support to improve walking speed in a child with diplegic cerebral palsy. The child was a six-year-old girl with spastic diplegic cerebral palsy. She walked short distances independently using a posterior support walker but was unable to keep up with her peers walking…

The Rhythmic Arts Project (TRAP) is touching the lives of typical children and adults with various disabilities all over the world and now has programs in two Bulgarian orphanages, day programs in Australia, and, most recently, in the general hospital in Johannesburg, South Africa. TRAP is also currently approaching facilities in more than 20…