A respite care program in New Jersey provides 50 families of mentally alert severely disabled adults with periodic relief. The program, which featured recreational and social activities, promotes the mental health of parents and families. (CL)

Many parents of children with autism and other severe disabilities report heightened levels of stress due to the unique challenges their children present. Respite care is likely to alleviate some of the stress associated with caring for a child with a severe disability. However, it is often difficult for families to identify motivated and…

A home-based respite care program for children and young adults with severe and multiple disabilities was conceived and developed by a group of parents and community members. A needs assessment revealed the scarcity of respite care in the Cambridge, Massachusetts area. A pilot program was begun to test the model on a limited basis. Evaluation of…

This report focuses on positive practices in providing support services to families of children with severe disabilities and chronic illnesses, based on visits to three sites in Maryland: the Family Support Program at the Kennedy Institute in Baltimore, the Coordinating Center for Home and Community Care, and Sick Kids Need Involved People (SKIP).…

The Family Support Project in Lansing, Michigan, provides a variety of family support services to help maintain severely mentally and severely multiply impaired children in their own communities, and whenever possible, in their own homes. Services offered include case management, family therapy, respite services, special needs purchases,…

The case study describes a family residential service for three people with profound and multiple disabilities in Burlington, Vermont. The disabled individuals live with a couple and their two children who are also provided support services in the form of weekend relief and helpers for the late afternoon and evening period. The house is owned by a…

This bulletin reflects the commitment of Syracuse University's Center on Human Policy to the idea that children belong with families. The bulletin contains a policy statement which recommends; that all children, regardless of disability, belong with families and need enduring relationships with adults; that families with severely disabled children…

Described in this report is the Saturday Afternoon Free respite care program for moderately to severely handicapped children operated under the auspices of the Idaho State University (ISU) College of Education. In service for 4 years, it has been evaluated by parents and student participants as excellent. It was developed in response to the need…

Provides parents and other concerned persons with information about some of the family support services and community-based living arrangements that are currently available to assist families in meeting the needs of their children who are severely and profoundly handicapped and/or chronically ill. Discussion includes funding sources, respite care,…

In early 2000, the Center on Human Policy started to receive reports that children with complex medical needs were being placed in nursing homes because of home care nursing shortages. Sensing that framing the issue as a nursing shortage directed solutions that revolved around nursing agency staff recruitment and retention strategies, the authors…

This paper profiles nine model programs for supporting families who care for a child with a severe illness or one or more disabilities and discusses current trends as they emerged from interviews with key persons in the field. Core components examined include self-help, advocacy, parent education, respite care, family-centered case management, and…