In February of 2000, "Exceptional Parent" introduced readers to the Crowley family. The author profiled John, Aileen, and their three children: Megan, Patrick, and John Jr. They told "Exceptional Parent" that in 1998 both Megan and Patrick were diagnosed with Pompe disease, a progressive, multisystemic, debilitating, and often fatal muscular…

This article presents an interview with Shonda Schilling, wife of retired professional baseball pitcher Curt Schilling. In addition to her role as mom, advocate, and author, Schilling is also a melanoma survivor and the Founder of Shade (http://www.shadefoundation.org), a non-profit organization dedicated to eradicating melanoma through the…

As a parent of a son with an autism spectrum disorder (ASD), the author was aware of the various theories regarding genetic predictors, toxic and heavy metal exposure, and immunization after-effects. However, she had not seriously considered that genetics or a history of emotional and psychological challenges in her family line could have been…

The author discusses the effects his disabilities have had on his life and explores some of the ways in which life is different for disabled persons. (PHR)

The author addresses his remarks on growing up disabled to a disabled child. Considered are family relationships, living in an institution, coping in school, relating to others, and planning for the future. (CL)

The article presents a personal profile of the many adjustment problems facing a physically handicapped seventh-grader who had spent the previous six years in a special school and was now being mainstreamed into a regular junior high, and how it affected his family. (DLS)

The mother of a moderately mentally handicapped son describes her decision to place her child in residential care. The author discusses her adjustment on learning of her son's handicap and how, after 10 years, she is confident that the decision she made was right for her family. (PHR)

In interviews with two disabled young adults, the difficulties of college life, both on and off campus, are explored. Topics covered include such areas as the problems of transportation, fears, leaving home, friendships, housing, support systems, and self-advocacy. (PHR)

The article focuses on clothing tips, weight control, adaptive aids, and sources of assistance for parents and children with disabilities. The author stresses the importance of appearance in the successful mainstreaming of handicapped children and emphasizes that self-care skills are legitimate educational goals. (Author/PHR)

Parents describe how the Disabled Students' Program at the University of California-Berkeley supported their daughter with cerebral palsy in pursuing an independent college career. Two vignettes describing college students' (with muscular dystrophy and physical disabilities) adjustment at Boston University are presented. (CB)

A case study explores the attitudes, opinions, and concerns of the parents of a cerebral palsied adolescent (as well as the views of the affected public and private school administrators) concerning the decision to allow their son to move from a private to a public high school environment. (JW)

A parent describes how presenting information on what it is like to have a disability to his son's teacher and fifth grade classmates helped his Down Syndrome son to adjust to a new school and achieve acceptance. The success of this strategy should encourage other parents to make comparable efforts. (JC)