The parent of a severely handicapped child encourages parents to prepare written care plans when leaving a child with others for a respite period. (DB)

An article is presented on the "burn-out" of parents, particularly those of autistic children (i.e., the exhaustion of their psychological and/or physical resources as a result of long and intense caring for their children), along with the comments and responses of five parents and professionals. (DLS)

The author, the mother of a cerebral palsied child, considers the conflicts which arise for parents in using respite care. Noted among the reasons why respite care use is difficult for parents are feelings of guilt, conflicts in mothering, self-punishment for having a handicapped child, identification with the child, and separation from the child.…

A parent of a severely handicapped daughter living at home in Alberta, Canada, discusses the need for family support systems such as respite care, reduced rent for needed equipment or vehicles, and financial aid to allow normal family living. Government and family are seen to share responsibility for the handicapped individual. (DB)

The newsletter offers perspectives on the provision of family support services for families with disabled members. An introductory article by Madeleine Will, Assistant Secretary for Special Education and Rehabilitative Services, stresses the impressive coping skills exhibited by many such families and their relationship to service professionals.…

A review of the changes in the treatment of and attitudes toward cerebral palsy in the last 30 years is presented. The author stresses the need for early diagnosis and evaluation, day care (especially respite care), counseling, transportation, special living arrangements, and integration of this population. (PHR)

Considerations related to the design and development of a respite care service delivery network for families of developmentally disabled persons are addressed. A five-component model for developing a respite care service network is presented, focusing on the need for competency-based service-provider training and parent involvement. Lastly,…

In this paper, by an educator who is also the parent of a son with mental retardation, the urgent needs of families whose children have chronic medical needs in addition to disabilities are discussed. One family's efforts to maintain their severely retarded and disabled son at home are described as an illustration not only of the unsurpassed…

This report discusses issues regarding the out-of-home placement of children with developmental disabilities and the need for permanency planning for these children. The document reports on a project which sought to: (1) discern practices of Colorado's Department of Social Services and Division for Developmental Disabilities which affect the…

This bulletin reflects the commitment of Syracuse University's Center on Human Policy to the idea that children belong with families. The bulletin contains a policy statement which recommends; that all children, regardless of disability, belong with families and need enduring relationships with adults; that families with severely disabled children…

South Carolina, a basically rural state, faces interrelated problems (housing, transportation, education, etc.) for 23,000 developmentally disabled individuals. These individuals are extremely vulnerable because of the lack of programs designed to meet their needs. Housing for the developmentally disabled remains very sparse and is often…

Describes developmental and behavioral characteristics of homeless young children and their parents. Reports on how states and communities are attempting to meet the early education and care of young children in homeless families. Discusses the needs or problems that early education and care programs that include homeless children should address.…

The report describes the program philosophy and accomplishments over the past decade of the Infant and Early Childhood Intervention Program (IECIP) of the Kansas University Affiliated Program (KUAP) at Parsons, Kansas, which has focused solely on delivering information and training to parents of developmentally delayed children. Topics discussed…

The use of crisis nursery care as a viable alternative for the consumer experiencing chronic and ongoing family crises calls for consideration of various programmatic and staffing issues. Combinations of family problems, including homelessness, substance abuse, incarceration, family violence, and chronic illness of a family member, may precipitate…

This report presents findings of a Minnesota study group which reviewed the costs and structures under which developmental disabilities services are provided. The group conducted a series of town meetings throughout the state and concluded with a toll-free call-in day. Six themes emerged from the meetings: (1) "We have a lot to be proud of…