Respite is one of the critical support systems for families and carers who support and care for a person with a life-long disability. This study examined the profile of respite services in the Australian state of New South Wales and explored respite providers' views of the factors influencing respite use, and their expectations of respite…

This article reports the experiences of families of children with autism in the People's Republic of China. The caregivers of 43 children with autism attending one of two short-term (3-month) intervention programmes for young children with autism were interviewed about their experiences before, during, and after the programme. Parent-to-parent…

The factor structure of a Chinese version of the Zarit Burden Interview was assessed with a random sample of Chinese caregivers in Canada. The results indicated that the latent constructs identified in earlier studies on caregivers did not fit well when tested with Chinese caregivers. Exploratory factor analysis reported a five-factor solution,…

The purpose of this article is to stimulate discussion and research about patient suffering and caregiver compassion. It is our view that these constructs are central to understanding phenomena such as family caregiving, and that recognizing their unique role in the caregiving experience provides new directions for intervention research, clinical…

As the proportion of older adults in the U.S. population grows, the prevalence of visual impairment related to cataracts, glaucoma, macular degeneration, and diabetic retinopathy will increase as well. Individuals who are visually impaired require various degrees of support and assistance in their daily activities. This assistance is frequently…

Background: Intensive Interaction is an approach to developing the pre-verbal communication and sociability of people with severe or profound and multiple learning disabilities and autism. Previous research has indicated many potential benefits; however, the approach is not consistently used in social care. Aim: To report on the significant and…

Background: An important question in community living is what factors influence the extent to which staff provide "active support". Methods: Engagement, care practices and a range of staff and organizational characteristics were studied in 72 residential homes serving 359 adults with intellectual disabilities. Managers in 36 settings were trained…

As the population of older adults increases and their potential for abuse and neglect increases, it is important a well-trained and competent workforce exists. Research has shown inadequate training of Adult Protective Services (APS) program staff is a major concern for adult protection programs, and one of the most important resources needed is…

This study examines the institutional and attitudinal changes in elder care homes in Tianjin, China. Based on a survey conducted in 2001 with 61 elder home managers and 265 elder residents, this study examines 1) factors that influence elder home managers' views about elder home development and 2) elders' evaluation of elder home quality and their…

The purpose of this study was to examine preschool caregivers' perceptions of the effect of gender on literacy skills. The five caregivers selected for the study were all female and full-time employees of the preschool. Case studies (including interviews, observations, and documentation) of each of the caregivers were conducted to examine their…

Background: There is little information on the psychometric properties of instruments for assessing family care burden in adults with intellectual disabilities (ID). The aim of this study is therefore to analyse the usefulness of the 'Subjective and Objective Family Burden Interview' (SOFBI) in the assessment of principal caregivers in Spain.…

Background: Adults with foetal alcohol spectrum disorder (FASD) require support to be part of the community; however, most have few supports other than family and friends. The purpose of this study was to assess caregiver perceptions of community integration of adults with FASD living in British Columbia. Method: The Assimilation, Integration,…

Background: This study investigated the perceived benefits and negative impact associated with stressful events and chronic caregiving demands encountered by parents caring for young adults with an intellectual disability in the period of transition to adulthood. Methods: A sample of 119 parents of young adults described these outcomes in a…

Although family scholars conceptualize caregiving in terms of networks of carers, little attention has been given to equity within these groups. Siblings comprise a prevalent caregiving network of members who feel responsible for parent care, expect to share these responsibilities with each other, and look to each other to evaluate the fairness of…

Background: This study examined the predictors, mediators and moderators of parent stress in families of preschool-aged children with developmental disability. Method: One hundred and five mothers of preschool-aged children with developmental disability completed assessment measures addressing the key variables. Results: Analyses demonstrated that…