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Bonnie Keilty; Melissa A. Jackson; JaneDiane Smith – Topics in Early Childhood Special Education, 2025
Part C early intervention (EI) starts no earlier than birth, even with a prenatal diagnosis resulting in automatic eligibility. Despite other early U.S. home visiting programs beginning prenatally and the increasing likelihood of uncovering certain diagnoses prenatally, pregnant families cannot access EI. This study sought to understand families'…
Descriptors: Early Intervention, Down Syndrome, Family Attitudes, Pregnancy
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Cohen, Shana R.; Miguel, Jessica; Trejos, Jessica – Journal of Autism and Developmental Disorders, 2023
To understand the ASD diagnosis and treatment pathways for US families, N = 38 Mexican-heritage mothers were interviewed about how and when they obtained an ASD diagnosis for their children. Most children (84%) were diagnosed between two and three years old. One-third of mothers reported receiving four to seven referrals before diagnosis. Mothers…
Descriptors: Autism Spectrum Disorders, Mexican Americans, Mothers, Children
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Talcer, Moyna Catherine; Duffy, Orla; Pedlow, Katy – Journal of Autism and Developmental Disorders, 2023
Research has found 96% of autistic individuals experience sensory processing difficulties, and being a parent presents many sensory demands that may be especially challenging for autistic mothers. Despite the high prevalence, no research exists exploring the sensory experiences of autistic mothers, highlighting the gap in current knowledge.…
Descriptors: Mothers, Autism Spectrum Disorders, Parents with Disabilities, Sensory Experience
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Paola Zanchi; Gaia Giulia Angela Sacco; Gaia Silibello; Paola Francesca Ajmone; Maria Antonella Costantino; Paola Giovanna Vizziello; Laura Zampini – International Journal of Language & Communication Disorders, 2024
Background: Maternal input plays an important role in influencing linguistic development during the first years of life, and it is evident that mothers adapt their language according to their child's characteristics. Recently, it was demonstrated that maternal input addressed to children with sex chromosome trisomies (SCTs) at 8 months of age is…
Descriptors: Mothers, Linguistic Input, Parent Child Relationship, Intellectual Disability
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May, Cynthia P.; Dein, Anthony; Ford, Jaclyn – Applied Cognitive Psychology, 2020
Flashbulb memories are vivid and salient memories for the moment one hears about a surprising, emotional, and significant event. The current research examined flashbulb memories for a loved one's medical diagnosis, focusing on individual and situational factors associated with memory development and endurance over time. An online survey collected…
Descriptors: Memory, Clinical Diagnosis, Influences, Mothers
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Catubigan, Robie V. – Discourse and Communication for Sustainable Education, 2023
The birth of a child is the beginning of a woman's motherhood. It is genuinely illuminated in her raising and rearing responsibilities. This study explores the understanding and experiences of Mansaka mothers about autism before and after diagnosis. This qualitative phenomenological inquiry employed face-to-face semi-structured interviews with…
Descriptors: Foreign Countries, Mothers, Autism Spectrum Disorders, Inclusion
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Abdullah, Hazlina; Mohd Asraf, Ratnawati; Ali, Myra Aidrin Mohd; Ab. Wahab, Nursyuhada'; Baharudin, Dini Farhana – International Journal of Evaluation and Research in Education, 2022
Autism spectrum disorder (ASD) is defined as a lifetime developmental disorder usually identified by social interaction impairment, communication deficits, and repetitive behavior. The cases of children detected with ASD are rising globally, including Malaysia. Parents, as the prime caregiver to these children, face numerous challenges due to what…
Descriptors: Child Rearing, Autism, Pervasive Developmental Disorders, Parent Attitudes
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Hyeyoung Kim; Sohyun An Kim; Han Lee; Robin Dodds – Journal of Autism and Developmental Disorders, 2024
Since autism diagnosis is directly linked to the availability of supportive services, identifying best practices for early diagnosis of autism has long been a concern of professionals and families. Meanwhile, studies show persistent racial disparities in autism diagnosis. Although numerous clinical diagnostic guidelines have been published, there…
Descriptors: Asians, Immigrants, Mothers, Autism Spectrum Disorders
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Rausch, John L.; Pascoe, Alicia – Journal of Ethnographic & Qualitative Research, 2021
Mothers' views of their experiences with their child with high functioning autism (HFA) have not been thoroughly investigated in previous research. Thirty mothers of children with high functioning autism participated in a semi-structured interview in the present qualitative study. The collected data were generally coded into five broad categories:…
Descriptors: Mothers, Parent Attitudes, Autism, Pervasive Developmental Disorders
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Emrah Marul; Hasan Hüseyin Yildirim – International Journal of Contemporary Educational Research, 2023
The aim of this study, which was carried out according to the life story/narrative research design, which is one of the qualitative research methods, is to examine the life story of a mother living with a child with an additional disability. In this context, a 5-year-old child with deficiencies such as hearing loss, autism and ADHD and his mother…
Descriptors: Mothers, Children, Disabilities, Young Children
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Morin, Marjorie; Rivard, Mélina; Morin, Diane; Mello, Catherine; Coulombe, Patrick – Journal of Applied Research in Intellectual Disabilities, 2022
Background: A large body of evidence suggest that parents of young children with autism spectrum disorder or intellectual disability experience low levels of satisfaction with the diagnostic evaluation process. This study sought to document parents' satisfaction with the services of a pilot clinic implemented in Québec, Canada. Method: Two-hundred…
Descriptors: Parents, Satisfaction, Young Children, Autism
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Kammes, Rebecca R.; Lachmar, E. Megan; Douglas, Sarah N.; Schultheiss, Hannah – Journal of Intellectual Disabilities, 2022
Perinatal depression/anxiety is a significant concern for mothers of children with Down syndrome. This is influenced by the way the Down syndrome diagnosis is shared with parents. This study examined social media posts from mothers regarding experiences of the birth of their child with Down syndrome. Forty-three total stories were coded using…
Descriptors: Mothers, Birth, Disclosure, Down Syndrome
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Laura Dalnoki; Petra P. M. Hurks; Jessica S. Gubbels; Simone J. P. M Eussen; Monique Mommers; Carel Thijs – Journal of Attention Disorders, 2025
Objective: Maladaptive daydreaming (MD) is characterized by vivid, excessive fantasy activity that becomes prioritized over other activities and may result in avoidant coping strategies. Little is known about the relationship between MD and internalized stigma in the neurodivergent sample. The current study aimed to examine emotional…
Descriptors: Attention Deficit Hyperactivity Disorder, Eating Habits, Symptoms (Individual Disorders), Autism Spectrum Disorders
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Dana Frantz Bentley – International Journal of Early Years Education, 2024
What does it mean for all children to be seen as whole and 'appropriate'? How can early childhood educators and families understand a child as capable and whole within the evaluative systems around disability? Through the narrative inquiry of a mother/early childhood teacher, this paper explores the complex entanglements between identity-affirming…
Descriptors: Early Childhood Education, Autism Spectrum Disorders, Students with Disabilities, Early Childhood Teachers
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Bornstein, Marc H.; Henry, Lauren M.; Manian, Nanmathi – Developmental Psychology, 2021
We compared language comprehension and production across the second year of life in children of clinically depressed mothers who later remitted with children of nondepressed mothers. Altogether, 157 mother-child dyads participated: 46 with mothers diagnosed at infant age 5 months as having major, minor, or other depressive disorders who fully…
Descriptors: Language Acquisition, Child Language, Infants, Depression (Psychology)
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