Certified child life specialists (CCLS) serve as an integral component of the health care team by attending to the psychosocial concerns that arise as children and their families face stressful situations. The CCLS provides individualized care to meet the developmental needs of infants, children, teens, and young adults and assists in coping with…

Family members of children with disabilities have become more involved in their children's care and have adopted the role of primary caregiver. Due to the varying degrees of the condition, children with cerebral palsy (CP) often require greater involvement from their caregivers. Fifteen caregivers for children with CP residing in rural communities…

The study aimed to identify patterns of respite use and coping strategies among family caregivers in a region of Ireland. Firstly, we asked what child and family characteristics were associated with use of respite care. Secondly, we explored coping strategies reported by family carers. The study was undertaken with a view to informing respite…

An article is presented on the "burn-out" of parents, particularly those of autistic children (i.e., the exhaustion of their psychological and/or physical resources as a result of long and intense caring for their children), along with the comments and responses of five parents and professionals. (DLS)

Designed for parents who wish to develop local respite care services for families with disabled children, this primer outlines strategies for: evaluating current available services and programs; pulling people together; conducting a needs assessment; raising money; and writing a proposal. (CB)

Users and non-users of home-based respite care services for parents of children with developmental disabilities were compared. The respite care group showed overall consistent benefits from the respite services in coping resources and stress reduction. (Author/DB)

This study of 78 mothers of mentally retarded children and adults found that respite care acts as a differential service that can enhance coping resources and is of most benefit to high self-esteem mothers of young developmentally disabled children, especially as a home-based model. (Author/JDD)

Describes Time Off Promotes Strength (TOPS), program for caregivers of Alzheimer's victims which provides in-home and day program services. Explains that, through application of service/training model adapted from Global Deterioration Scale, TOPS maintains high quality of services with limited but highly trained professional staff. (Author/NB)

The newsletter offers perspectives on the provision of family support services for families with disabled members. An introductory article by Madeleine Will, Assistant Secretary for Special Education and Rehabilitative Services, stresses the impressive coping skills exhibited by many such families and their relationship to service professionals.…

A survey of parents/caregivers of a child with an autism spectrum disorder (ASD) was conducted to examine the relationship between ASD characteristics, family functioning and coping strategies. Having a child with ASD places considerable stress on the family. Primary caregivers of a child with ASD from a regional and rural area in Victoria,…

Children with disabilities receive most of their support from families. While most family caregivers are mothers or fathers, grandparents are increasingly providing care for children with disabilities. In addition, family caregivers come from diverse cultural backgrounds that impact their views on disability. This paper reviews the literature on…

Considerations related to the design and development of a respite care service delivery network for families of developmentally disabled persons are addressed. A five-component model for developing a respite care service network is presented, focusing on the need for competency-based service-provider training and parent involvement. Lastly,…

Describes respite care, a temporary relief service for families with developmentally disabled members at home, as an essential element in preventing institutionalization of disabled persons. Major approaches for providing respite care are identified. The advantages and disadvantages of the different approaches are discussed. (Author/JAC)

Background: Parents of children and adolescents with both intellectual disabilities (ID) and psychopathology often experience high levels of parenting stress. To support these parents, information is required regarding the types of support they need and whether their needs are met. Method: In a sample of 745 youths (aged 10-24 years) with moderate…

This article describes an intervention designed to reduce the guilt of parents, experiencing marital difficulties, who had a child with profound physical and intellectual deficits. Following a formal assessment of their daughter, the emotional climate of the marriage was much improved and they felt more able to cope. (Contains references.) (CR)