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Direct linkAbbott, Natalie – Exceptional Parent, 2011
Of the nearly 7,000 rare diseases identified by the National Institutes of Health (NIH), only a few hundred currently have treatments. The development of therapies for rare diseases is often hampered by the special challenges of conducting the needed studies for rare disease drugs and medical devices, such as small numbers of patients and the fact…
Descriptors: Diseases, Patients, Nonprofit Organizations, National Organizations
