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Direct linkDavid Dobel-Ober; Paul Moloney; Sarah Millichap – British Journal of Learning Disabilities, 2024
Background: Coproduction is a fast-developing approach to patient involvement. It entails health and social care services users working as equals in partnership with providers and other public institutions to produce novel research and information, usually aimed at the improvement of service planning and delivery. Methods: This paper presents two…
Descriptors: Foreign Countries, Males, Learning Disabilities, Health Services
Cuccu, Zara; Bourne, Tom; Abi-Aad, Gerrard; Bennett, Samantha – Journal of Applied Research in Intellectual Disabilities, 2021
Background: People with learning disabilities have higher rates of admitted patient care than the general population. This study explored emergency hospital admissions during 2018/19 in association with learning disability health check recording in general practice within the Kent Integrated Dataset during 2016/17 to 2018/19. Methods: Multiple…
Descriptors: Foreign Countries, Hospitals, Patients, Developmental Disabilities
Lisa Donaldson; Donna O'Brien; Marek Karas – British Journal of Learning Disabilities, 2024
Background: People with a learning disability experience challenges accessing primary health care services, including eye care services. Methods: Eye care needs of people with a learning disability, and how well they are met by existing services in England, were explored. Barriers and enablers to accessing these services were investigated. This…
Descriptors: Foreign Countries, Access to Health Care, Vision, Affordances
Debbie Kilbride; Tanya Cotier; Richard Malthouse – British Journal of Special Education, 2024
This research identifies new approaches to education health and care plan (EHCP) provision since the start of the COVID-19 (C-19) pandemic (March 2020 to March 2021). This qualitative research was conducted after the C-19 pandemic and used online questionnaires to identify the perceptions of 64 SENCos recruited from mainstream primary and…
Descriptors: Foreign Countries, Special Education, Coordinators, Special Needs Students
Marianne Durand; Rajan Nathan; Sophie Holt; Sharleen Nall-Evans; Ceri Woodrow – Journal of Applied Research in Intellectual Disabilities, 2024
Background: NHS England's "Transforming Care" agenda aims to reduce the number of adults with intellectual disabilities and autistic adults in mental health hospitals. The aim was to understand the demographic and clinical characteristics of those most at risk of admission. Method: A cohort, retrospective study of adults using community…
Descriptors: Intellectual Disability, Adults, Mental Health, Health Services
Rebecca Wallace; Julian Morris; Melanie Hodgkinson – British Journal of Learning Disabilities, 2024
Background: Recent Government guidelines have promoted returning people with learning disabilities and/or autism from out-of-area placements to their local communities. These transitions not only impact the individuals but also their families. Methods: This study explores the experiences of family members who have been involved in the repatriation…
Descriptors: Learning Disabilities, Autism Spectrum Disorders, Transitional Programs, Geographic Location
Mary Bottomley; Jodie Bradley; Lisa Clark; Bryan Collis; Bojana Daw Srdanovic; Victoria Farnsworth; Annie Ferguson; Dan Goodley; Andrew Fox; Nikita K. Hayden; Charlotte Lawthom; Rebecca Lawthom; Claudia Magwood; Robert McLean; Ian Middleton; Alison Owen; Matty Prothero; Simon Rice; Simon Richards; Katherine Runswick-Cole; Kelly Scargill; Rohit Shankar; Toni Ann Wood – British Journal of Learning Disabilities, 2024
Background: We are a research team of clinical, academic and advocacy-based researchers with and without learning disabilities, working on the "Humanising Healthcare" (for people with learning disabilities) project. The project is dedicated to finding and sharing healthcare practices that enhance the lives of people with learning…
Descriptors: Ethics, Learning Disabilities, Guidelines, Researchers
Heslop, Pauline; Byrne, Victoria; Calkin, Rachel; Gielnik, Kamila; Huxor, Avon – Journal of Intellectual Disabilities, 2022
In England, the national mortality review programme for people with intellectual disabilities, the LeDeR programme, was established in 2015. The programme supports local areas to review the deaths of all people with intellectual disabilities aged 4 years and over. Each death has an initial review; if indicated, a full multi-agency review takes…
Descriptors: Mortality Rate, Intellectual Disability, Foreign Countries, Health Services
Kilbane, Jackie; Hempsall, Sophie; North, Katharine; Zafeiris, Pavlos – Action Learning: Research and Practice, 2022
This account of practice focusses on insights from the 'early days' of an action learning set within a leadership development programme in the English NHS. The account describes experiences of forming as a set as an important foundation for trust. Developing trust between set members enabled members to take more risks, sharing current and complex…
Descriptors: Experiential Learning, Health Services, Leadership Training, Trust (Psychology)
Adams, Lucy; Adamo, Nicoletta; Hollocks, Matthew J.; Watson, Jennifer; Brewster, Aylana; Valmaggia, Lucia; Jewitt, Emma; Edwards, Jodie; Krisson, Maisie; Simonoff, Emily – Autism: The International Journal of Research and Practice, 2023
Telepsychiatry has been rapidly adopted to help control the spread of coronavirus. Clinicians have raised concerns over this for individuals diagnosed with autism spectrum disorder. The remote delivery of psychological interventions in particular requires further attention as their in-person delivery has autism spectrum disorder--associated…
Descriptors: Autism Spectrum Disorders, Intervention, Telecommunications, Adolescents
Mulligan, Casey B. – National Bureau of Economic Research, 2021
The health costs of in-person schooling during the pandemic, if any, fall primarily on the families of students, largely due to the fact that students significantly outnumber teachers. Data from North Carolina, Wisconsin, Australia, England, and Israel covering almost 80 million person-days in school help assess the magnitude of the fatality risks…
Descriptors: Foreign Countries, Risk, Costs, Health Services
Horton, Cal – Journal of Early Adolescence, 2023
Puberty can be a particularly challenging time for adolescents who are transgender. Access to puberty blocking medication, commonly called 'puberty blockers', is considered an integral component of gender affirmative healthcare. Existing literature provides little insight into how parents of trans children entering into early adolescence navigate…
Descriptors: Puberty, Sexual Identity, Drug Therapy, Parent Role
G.J. Melendez-Torres; Ruth Ponsford; Rebecca Meiksin; Nerissa Tilouche; Neisha Sundaram; Joanna Sturgess; Elizabeth Allen; Maria Lohan; Honor Young; Alison Hadley; Rona Campbell; Chris Bonell – Sex Education: Sexuality, Society and Learning, 2024
Student-reported quality and coverage of school-based relationships and sex education (RSE) vary, with gender/sexual-minority and disadvantaged students reporting poorer provision. Experience of RSE among younger adolescents is under-explored. We examined student-reported RSE coverage and priorities and how coverage, and sexual-health knowledge…
Descriptors: Foreign Countries, Student Attitudes, Sexuality, Sex Education
Maria Livanou; Sophie D'Souza; Rebecca Lane; Breanna La Plante; Swaran P. Singh – Administration and Policy in Mental Health and Mental Health Services Research, 2021
Young people moving from child and adolescent secure hospitals present with complex needs and vulnerabilities and are more likely to experience poor transition outcomes. Previous research has indicated the presence of several risk factors in periods of transition, such as poor liaison among services, lack of proper planning, shortage of beds in…
Descriptors: Mental Health, Health Services, Risk, Psychiatric Hospitals
Cooper, Kate; Mandy, William; Russell, Ailsa; Butler, Catherine – Autism: The International Journal of Research and Practice, 2023
Autistic people are over-represented at gender clinics, but there is limited research to guide clinical practice with this group. We investigated the perspectives of clinicians working with autistic patients who experience gender dysphoria. We asked clinicians about the relationship between autism and gender dysphoria, and whether they work…
Descriptors: Autism Spectrum Disorders, Sexual Identity, Correlation, Patients
