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Mason, David; Ingham, Barry; Birtles, Heather; Michael, Cos; Scarlett, Clare; James, Ian A.; Brown, Toni; Woodbury-Smith, Marc; Wilson, Colin; Finch, Tracy; Parr, Jeremy R. – Autism: The International Journal of Research and Practice, 2021
Autism spectrum condition is associated with co-occurring physical health conditions and premature mortality. Autistic people experience multiple barriers to accessing healthcare. This study investigated autistic people's experiences of healthcare and professionals' experiences of providing healthcare to autistic people. Focus groups with 11…
Descriptors: Autism, Pervasive Developmental Disorders, Access to Health Care, Allied Health Personnel
Awan, N.; Oliver, C.; Wilde, L.; Eden, K.; Waite, J. – Journal of Intellectual & Developmental Disability, 2018
Background: There is limited research documenting the health and/or psychological services accessed by adults with rare genetic syndromes who engage in challenging behaviour. The study documented service receipt and associations with person characteristics. Method: Thirty-two parents of adults with rare genetic syndromes completed an adapted…
Descriptors: Adults, Genetic Disorders, Behavior Problems, Autism
Parsons, Sarah – International Journal of Inclusive Education, 2015
Adults on the autism spectrum are significantly under-represented in research on educational interventions and support, such that little is known about their views and experiences of schooling and how this prepared them for adult life. In addition, "good outcomes" in adult life are often judged according to normative assumptions and tend…
Descriptors: Adults, Autism, Pervasive Developmental Disorders, Online Surveys
McGill, Peter; Murphy, Glynis; Kelly-Pike, Amanda – Journal of Applied Research in Intellectual Disabilities, 2009
Background: The use of physical intervention (PI) with people with intellectual disabilities continues to cause concern. This study sought to clarify the frequency and circumstances of PI use and gather data on the characteristics of individuals subject to PI. Method: Data on individuals subject to PI were gathered by postal questionnaire…
Descriptors: Mental Retardation, Foreign Countries, Individual Characteristics, Intervention
Symes, Matthew D.; Remington, Bob; Brown, Tony; Hastings, Richard P. – Research in Developmental Disabilities: A Multidisciplinary Journal, 2006
The variability in outcomes observed in home-based early intensive behavioral intervention for children with autism is likely in part to be the result of the quality of therapist performance. Therapist behavior in this context, however, is poorly understood. To achieve such an understanding, it will be necessary to specify how factors such as…
Descriptors: Foreign Countries, Autism, Child Behavior, Behavior Disorders